ME/CFS
Outcome unclear
Years with undiagnosed Lyme, later neuro Lyme and ME/CFS; no CFS improvement noted
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- years
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
I ended up developing neuro Lyme, and cfs.
In context ↗ - Began after: a bacterial or tick-borne infection
I lived with undiagnosed Lyme for years
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They lived with undiagnosed Lyme disease for years before it was identified; they tested positive twice and had a month of doxycycline. By then they had developed Lyme arthritis, and afterwards neuro Lyme and CFS. They wrote that Lyme can be a trigger for autoimmune disease, fibromyalgia and CFS in genetically prone people. They did not mention any treatment for the CFS itself or any improvement.
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What they tried
Also tried
Their words about each treatment
- doxycycline · Not said
I lived with undiagnosed Lyme for years, developed Lyme arthritis, tested positive twice and was treated with a month of doxycycline. I ended up developing neuro Lyme, and cfs.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | undiagnosed Lyme infection for yearsI lived with undiagnosed Lyme for yearsIn context ↗ |
| — | developed Lyme arthritisdeveloped Lyme arthritis, tested positive twice and was treated with a month of doxycyclineIn context ↗ |
| 2026-07-05 | developed neuro Lyme and CFSI ended up developing neuro Lyme, and cfs.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
developed Lyme arthritis
In context ↗