ME/CFS
Severe → no benefit
Severe ME/CFS after covid booster and flu vaccine, still struggling
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Apr 2025
In their words
- Condition: ME/CFS
I slid from moderate to severe a couple of years ago
In context ↗ - At worst: Severe
I’m currently lying on the sofa waiting for my painkillers to kick in so I can go and brush my hair for the first time in 3 days.
In context ↗ - Now: No benefit
I slid from moderate to severe a couple of years ago ... I’m struggling to deal with…well, everything, honestly.
In context ↗ - Began after: a vaccination
was given covid booster snd flu vaccine at the same time, at which point my immune system seems to have collapsed entirely
Summary
Breeze 80412, who has ME/CFS, was moderately ill before sliding to severe a couple of years ago, after a covid booster and flu vaccine given at the same time; they say their immune system collapsed and they have struggled since. In their latest posts they were lying on the sofa, needing painkillers before brushing their hair for the first time in three days, and said they had danced at a ceilidh knowing they would be bedbound for a week afterwards.
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What they tried
Also tried
Their words about each treatment
- painkillers · Not said
waiting for my painkillers to kick in so I can go and brush my hair for the first time in 3 days
In context ↗ - pacing · Not said
you spend several days beforehand pacing, planning, watching what you eat, drink, watch, read etc etc etc to try snd keep your max energy levels
In context ↗ - COVID vaccination as treatment · Worse
I slid from moderate to severe a couple of years ago (was given covid booster snd flu vaccine at the same time, at which point my immune system seems to have collapsed entirely)
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| a couple of years ago (about 2023) | slid from moderate to severe after a covid booster and flu vaccine given at the same timeI slid from moderate to severe a couple of years ago (was given covid booster snd flu vaccine at the same time, at which point my immune system seems to have collapsed entirely)In context ↗ | Severe |
| 2025-04-16 | still severe, lying on the sofa, needing painkillers before brushing their hair; expects a week bedbound after a ceilidhI’m currently lying on the sofa waiting for my painkillers to kick in so I can go and brush my hair for the first time in 3 daysIn context ↗ | Severe |
Adverse events
- COVID vaccination as treatment“I slid from moderate to severe a couple of years ago (was given covid booster snd flu vaccine at the same time, at which point my immune system seems to have collapsed entirely)” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I’ve danced at a ceilidh fully knowing I’d be bedbound for a week after it
In context ↗ - Pain & fibromyalgia
waiting for my painkillers to kick in
In context ↗