Long COVID with a bad nausea and vomiting crash, now somewhat better on LDN and pacing
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3.5 years
- Last post
- Jan 2024
In their words
- Condition: Long COVID
I’m one of the lucky long Covid subsets that doesn’t have histamine intolerance.
In context ↗ - At worst: Moderate
I managed to get a support worker who helps with all the household work.
In context ↗ - Now: Somewhat better
I’m now about 50% recovered on the brain fog and fatigue front.
In context ↗ - Began after: COVID
I’ve had this since March 2020.
In context ↗ - Says they never had: Mast cell (MCAS) & allergies
I’m one of the lucky long Covid subsets that doesn’t have histamine intolerance
Read from 10 of their posts and comments; links to the 6 this page draws on
Summary
Long COVID since March 2020. In July 2023 a bad crash with nausea and vomiting followed starting LDN, weekly 24-hour fasts and extra walking. By November 2023 they were about 50% recovered from brain fog and fatigue on LDN and strict pacing; homemade milk kefir later eased symptoms further. Two courses of antibiotics brought back belly pain and nausea, and they caught COVID again.
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What they tried
What they credit
Also tried
Their words about each treatment
- valacycloivir · No change
I’ve been taking valacycloivir and the aciclovir the whole way through having long Covid, for herpes. Didn’t make any difference to my symptoms.
In context ↗ - LDN (Low Dose Naltrexone) · Helped
it feels like I’m going through a bad crash ... I’ve tried it and it helped a lot with brain fog and fatigue.
- intermittent fasting · Not said
The other things I started doing at the same time as LDN - intermittent fasting (24 hour fast once a week for two weeks).
In context ↗ - milk kefir · Helped a lot
Since this change in diet I’ve had zero gastrointestinal issues (for the first time in ten years) and really good sleep ... as well as my long Covid symptoms easing up considerably.
In context ↗ - homemade kimchi and kombucha · Not said
I sometimes supplement with homemade kimchi and kombucha. ... it helps give me a bit of a routine too.
- vitamin c · Not said
I also take high doses of vitamin c and quercetin
In context ↗ - banana for prebiotics · Not said
a banana every day for prebiotics.
In context ↗ - pill form probiotics (Biokult) · Not said
taking one every day for two weeks.
In context ↗ - oral antibiotics · Worse
I recently had to take two courses of oral antibiotics, back to back. This seems to have upended a lot of my progress
In context ↗ - pacing · Helped a lot
I see you’ve already been working on pacing. This has helped me more than anything.
In context ↗ - hyperbaric oxygen treatment · Helped
I tired regular treatments over a few months, say one to two a week, and it lifted up a veil for me.
In context ↗ - meditating · Not said
I do it now every day, but for a long time it would definitely make me more angry, more horrified, sent my heart rate soaring.
In context ↗ - therapy and writing · Not said
I had to process a lot of anger at my illness first with therapy and writing.
In context ↗ - exercise, very gradual work · Worse
I was reccomended exercise, very gradual work, the kind that elderly patients with respiratory illnesses do, and it badly affected my recovery.
In context ↗ - support worker for household work · Helped
It gave me enough of a rest from the extreme high anxiety of just living with long Covid
In context ↗
Approaches: Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3.3 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2020 | long COVID beganI’ve had this since March 2020.In context ↗ | Not stated | |
| July 2023 | bad crash about 20 days into LDN, with weekly 24-hour fasts and extra walkingit feels like I’m going through a bad crash. I feel worse than I’ve had in monthsIn context ↗ | Moderate | |
| November 2023 | about 50% recovered on brain fog and fatigueI’m now about 50% recovered on the brain fog and fatigue front.In context ↗ | Mild | Low-dose naltrexone |
| January 2024 | belly swelling and pain returned after two courses of antibiotics; COVID reinfection while travellingThis seems to have upended a lot of my progress, with the belly swelling and pain suddenly starting up again.In context ↗ | Mild |
Adverse events
- Low-dose naltrexone“Since beginning my daily minimum dose, it feels like I’m going through a bad crash. I feel worse than I’ve had in months” In context ↗ Made symptoms worse
- Low-dose naltrexone“I’ve become easily nauseous with my food, sometimes throwing up, very unusual for me.” In context ↗ Gut side effects
- Meditation, yoga, breathwork“for a long time it would definitely make me more angry, more horrified” In context ↗ Mood or psychiatric effects
- Meditation, yoga, breathwork“sent my heart rate soaring” In context ↗ Heart rhythm problems
- Graded rehab and self-made programmes“I was reccomended exercise, very gradual work, the kind that elderly patients with respiratory illnesses do, and it badly affected my recovery.” In context ↗ Made symptoms worse
- Antibiotics (unspecified)“This seems to have upended a lot of my progress, with the belly swelling and pain suddenly starting up again. ... The antibiotics really were the worst, I’ve had low level nausea and terrible appetite ever since.” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
I’m now about 50% recovered on the brain fog and fatigue front.
In context ↗ - Gut problems
the belly swelling and pain suddenly starting up again
In context ↗ - Sleep problems
circadian rhythm is all over the place
In context ↗ - Anxiety & low mood
I’m anxious because I got Covid again whilst I was travelling
In context ↗ - Post-exertional malaise
Maybe over exerted walking a little bit??
In context ↗
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