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ME/CFS Mild → no benefit

Mild ME/CFS with six- to eight-month crashes, no improvement

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
Apr 2025
In their words
  • Condition: ME/CFSI have a continuous cycle where I'm doing better for a few months and start making plans for myself, then crash for six to eight months and can only do the basics. In context ↗
  • Now: No benefitMe, I'm mild, but nothing helps and I get no where with Doctors. In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on

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Summary

A person with mild ME/CFS who cycles between a few better months of making plans and crashes of six to eight months when they can only do the basics. They also described IH and a CPAP that did nothing for them. Brain fog was helped by high-potassium foods and V8, and strong methylated cough drops helped only as long as they lasted. By April 2025 they said nothing helped and doctors got them nowhere.

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What they tried

Their words about each treatment
  • CPAP · No changeI have IH and have a CPAP that does nothing for me too. In context ↗
  • potassium intake · Helpedpotassium intake helps with brain fog In context ↗
  • V8 (high sodium) · Helpedreally bad brain fog/hangover like symptoms went away after I had three 12 oz cans of V8, which is a ridiculous amount of sodium In context ↗
  • methylated cough drops · HelpedStrong methylated cough drops help, but only as long as they last. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—Living with mild ME/CFS in a cycle of short remissions and long crashesI occasionally have mini remissions where I have some energy and start making plans--then I crash for six months with even less energy than my normal base. In context ↗Mild
2024-03-29doing better for a few months and making plansI have a continuous cycle where I'm doing better for a few months and start making plans for myself In context ↗Mild
2024-03-29crash for six to eight months, could only do the basicsthen crash for six to eight months and can only do the basics In context ↗Mild
2025-04-09still mildly ill, doctors got them nowhereMe, I'm mild, but nothing helps and I get no where with Doctors. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Brain fogpotassium intake helps with brain fog In context ↗
  • Sleep problemsI have IH and have a CPAP that does nothing for me too. In context ↗

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