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Long COVID Severe → somewhat betterIll 3 years before improving or writing

Month-long mono-like long COVID with rash and fatigue, now somewhat better with rest

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
3 years
Last post
Jul 2026
In their words
  • Condition: Long COVIDA lot of us long hauler/EBV In context ↗
  • At worst: SevereSince I’ve only had the ability to lay on my couch while I recover In context ↗
  • Now: Somewhat betterWhich I’ve done and have gradually improved (it’s going on a month). ... Even though I still feel like crap compared to my “normal” level of functioning In context ↗
  • Began after: COVIDsince Covid infection 2 (not the vaccine, the infection)
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Osprey 72827 dates smaller bouts of long COVID to a second COVID infection around three years ago. A month-long mono-like illness with rash, swollen glands, sore joints, fatigue and fever led to EBV testing and advice to rest. Rest, avoiding strenuous exercise and heat, and taking breaks brought gradual improvement, though they still felt far below normal.

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What they tried

Also tried

avoiding the heat· Helped
Their words about each treatment
  • rest · HelpedThe dr treated it as mono and said rest. Which I’ve done and have gradually improved (it’s going on a month). In context ↗
  • avoiding strenuous exercise and taking breaks when my body tells me · Helpedavoiding strenuous exercise ... taking breaks when my body tells me have all helped In context ↗
  • avoiding the heat · Helpedavoiding the heat ... have all helped In context ↗

Approaches: Pacing · Radical rest

Their path

Very severeSevereModerateMildNear normalRecovered2.9 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.9 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
about three years before July 2026smaller bouts of illness since second COVID infectionI thought back to the last three years and realized I’ve been experiencing smaller bouts with this since Covid infection 2 (not the vaccine, the infection). In context ↗Not stated
June 2026mono-like illness; could only lie on the couchSince I’ve only had the ability to lay on my couch while I recover it’s given me ample time to research EBV In context ↗Severe
2026-07-06gradual improvement with rest, still far below normalWhich I’ve done and have gradually improved (it’s going on a month). In context ↗ModeratePacing and the energy envelope

Symptoms mentioned

Their words about their symptoms
  • Flu-like symptomsrash, swollen lymph nodes, sore joints, fatigue, fever In context ↗

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