ME/CFS
Severe → somewhat better
ME/CFS with brain fog and fatigue, somewhat better with depression meds and a wheelchair
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
Before I knew I had CFS I was sure it was just depression.
In context ↗ - At worst: Severe
I only ever wash it when I desperatly need a shower, and putting it up just worsens headaches for me. My boyfriend can help me wash it but its still such an energy suck for me
In context ↗ - Now: Somewhat better
My wheelchair! Getting it allowed me to go out and actually be happy being out. It's done everything for me
In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
Sandpiper 12066 has CFS. Depression medication cleared almost all the mental distress but the brain fog and fatigue remained. A wheelchair let them get out and be happy out, and a low-maintenance haircut cut the energy cost of hair care. They were doing an NHS depression management course and planned to ask for further support.
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What they tried
Their words about each treatment
- deppression meds · Helped
I spoke to my doctor and went on deppression meds. Almost all the mental distress went away but the brain fog and fatigue was still there.
In context ↗ - depression management course · Worse
Honestly sitting on a zoom call for an hour and a half hearing them talk about how to ground myself just makes me more sad and bored.
In context ↗ - wheelchair · Helped a lot
My wheelchair! Getting it allowed me to go out and actually be happy being out. It's done everything for me
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| 2026-04-18 | got a wheelchair and could go outMy wheelchair! Getting it allowed me to go out and actually be happy being out.In context ↗ |
| 2026-04-23 | short low-maintenance haircut cut the energy cost of hair careI had long hair that I just couldn't manage anymore with the energy washing and brushing took but I didn't want to let it go.In context ↗ |
| 2026-10-01 | still ill, relying on comfort items and their wheelchairI have Longcat who I got years before my CFS and has always been helpful.In context ↗ |
Adverse events
- CBT and psychotherapy“Honestly sitting on a zoom call for an hour and a half hearing them talk about how to ground myself just makes me more sad and bored.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
Almost all the mental distress went away but the brain fog and fatigue was still there.
In context ↗ - Anxiety & low mood
Before I knew I had CFS I was sure it was just depression.
In context ↗