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Long COVID Moderate → much betterIll 18 months before improving or writing

Almost housebound with long COVID, much better after escitalopram and rehab

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
18 months
Last post
Nov 2024
In their words
  • Condition: Long COVIDI have LC since feb 2023 In context ↗
  • At worst: ModerateThis summer, i was almost housebound and not able to walk more than 5 mins, and do things like cook a meal. In context ↗
  • Now: Much betterwithin weeks i was able to do walks up to 15/20 mins, do groceries ... For now i will only do one course (instead of 3). In context ↗
  • Began after: COVID24 y/o male, I have LC since feb 2023
Read from 5 of their posts and comments; links to the 4 this page draws on

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Summary

A 24-year-old Dutch man developed long COVID in February 2023 and became almost housebound by May 2024, unable to walk five minutes, with fatigue, palpitations, anxiety, bloating and sensory overload. From August 2024 he built escitalopram from 2.5 to 10 mg after a severe first week; by November he could walk 15-20 minutes, shop, cook, drive and attend a lecture, though still far from his old life. He also attended a long COVID rehab programme.

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What they tried

Their words about each treatment
  • escitalopram (Lexapro) · Helped a lotI am on 10mg now for about 2 months and the change is massive. In context ↗
  • rehab hospital physiotherapy, fitness and sports · HelpedAlthough the rehab treatment really helps me, the SSRI has made a massive change. In context ↗
  • psychologist and ergotherapist at rehab hospital · Not saidIn earlier stages i went to a psychologist and ergotherapist mostly In context ↗

Approaches: SSRIs · Physiotherapy and rehab

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
February 2023long COVID onsetI have LC since feb 2023 ... Have had PEM as well, but that was last year when i still (tried to) do sportsMild
May 2024almost housebound; could not walk more than 5 minutes or cook a mealHavent been bedbound yet but i’m pretty much housebound since may ... not able to walk more than 5 minsModerate
2024-08-05severe first week on escitalopram 10 mgSide effects were terrible, it has been one of the toughest weeks yet. In context ↗Moderate
August-September 2024walks of 15-20 minutes, groceries and short outings with friendswithin weeks i was able to do walks up to 15/20 mins, do groceries (first with my dad, then by myself) In context ↗ModerateEscitalopram (Lexapro)
2024-11-11first lecture in 1.5 years; shopping, cooking, driving and cycling againToday i had my first lecture (for my study) in like 1,5 years. It was boring, but it went well. In context ↗MildEscitalopram (Lexapro)

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseHave had PEM as well, but that was last year when i still (tried to) do sports In context ↗
  • Heart symptoms & palpitationsOther symptoms are palpitations, anxiety, bloating and sensory overload In context ↗
  • Light & noise sensitivitysensory overload In context ↗

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