ME/CFS
Moderate → somewhat betterIll 5 years before improving or writing
ME/CFS with daily 8/10 pain, somewhat better with CBD oil and marijuana
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 5 years
- Last post
- Dec 2020
In their words
- At worst: Moderate
Even having half an hour of relief just to get chores or something done feels like a blessing at this point lol
In context ↗ - Now: Somewhat better
CBD oil took me from a 7/8 out of 10 on the pain scale daily to barely even noticeable. It’s made my life a lot more bearable
In context ↗
Read from 27 of their posts and comments; links to the 17 this page draws on
Summary
Lynx 36810 had ME/CFS for about five years and POTS, with daily 8/10 muscle and joint pain, plus nausea, IBS and anxiety. High-strength CBD oil and high-CBD marijuana cut the pain to barely noticeable and gave them a couple of energised hours a day. From summer 2020 migraines and constant visual snow began, with migraines later daily again; CBD was stopped because it worsened the visual snow. A low-sodium diet caused a crash that more salt eased.
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What they tried
Also tried
CBD oil· Helped a lotHigh CBD marijuana strains· Helped a lot16:8 intermittent fasting· HelpedNaratriptan· Helpedalcohol· Helpedhigh antioxidant smoothies with ginger and turmeric· HelpedAmitriptyline· Helped · wore offsodium / salt intake· Helpedanti depressant· No changeD-Ribose· Worsemeditation· Not saidEpsom bath salts· Not saidmelatonin· Not saidCannabis (THC, marijuana)· Not said
Their words about each treatment
- 16:8 intermittent fasting · Helped
Definitely helped my IBS symptoms and I feel like it’s helped me to wake up earlier generally.
In context ↗ - CBD oil · Helped a lot
CBD oil took me from a 7/8 out of 10 on the pain scale daily to barely even noticeable.
In context ↗ - High CBD marijuana strains · Helped a lot
High CBD strains have been a god send for me personally, went from 8/10 muscle and joint pain and nausea every day to basically cured of the problems
In context ↗ - Naratriptan · Helped
doctor prescribed me Naratriptan for migraine which helps a little
In context ↗ - anti depressant · No change
he gave me a form of anti depressant but they did nothing for me
In context ↗ - meditation · Not said
my routine is meditation in the evening
In context ↗ - Epsom bath salts · Not said
run a big bath with Epsom bath salts in
In context ↗ - melatonin · Not said
a melatonin when you’re in bed and ready to try to sleep
In context ↗ - alcohol · Helped
Drinking once a week literally keeps me sane
In context ↗ - D-Ribose · Worse
Couldn’t leave the house for fear of shitting myself on public transport.
In context ↗ - high antioxidant smoothies with ginger and turmeric · Helped
the ginger and turmeric have worked wonders for my nausea personally
In context ↗ - Amitriptyline · Helped
I’m on Amitriptyline and it cleared my migraines completely for about 6 weeks but now they’re back to pretty much daily again
In context ↗ - sodium / salt intake · Helped
Going from a crappy high sodium diet to a healthy low sodium one caused a huge crash and worsening of my POTS symptoms this year lol upping my sodium again has helped.
In context ↗ - Cannabis (THC, marijuana) · Not said
I smoked for a few years and then started getting anxiety attacks whenever I smoked.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | ME/CFS and POTS onset; years of daily 8/10 muscle and joint pain, nausea and IBS, only brief windows of relief to do choreswent from 8/10 muscle and joint pain and nausea every day to basically cured of the problemsIn context ↗ | Moderate | |
| about a year before 2020-08-14 | high-strength CBD oil and high-CBD marijuana; pain, anxiety and nausea much reduced, energised for a couple of hours a dayHigh strength CBD oil (4800mg bottle) has really helped me with chronic joint/muscle pain and my anxiety.In context ↗ | Mild | |
| 2020-08 | daily migraines with aura, panic attacks and constant visual snow appearednon stop flashing lights in my vision 24/7, even when I close my eyesIn context ↗ | Mild | |
| 2020 | huge crash and worse POTS after switching to a healthy low-sodium dietGoing from a crappy high sodium diet to a healthy low sodium one caused a huge crash and worsening of my POTS symptoms this yearIn context ↗ | Mild | |
| 2020-12-22 | upped sodium again, which helped their POTS; happier overall but migraines and visual snow persistupping my sodium again has helped.In context ↗ | Mild | Salt, electrolytes and fluids |
Adverse events
- D-ribose“had about 5 times the recommended dose 3 times a day. Couldn’t leave the house for fear of shitting myself on public transport.” In context ↗ Gut side effects
- Cannabis (THC, marijuana)“I smoked for a few years and then started getting anxiety attacks whenever I smoked.” In context ↗ Mood or psychiatric effects
- CBD (cannabidiol)“I’ve used CBD oil for years but have stopped now as it makes my visual snow unbearably worse” In context ↗ Made symptoms worse
- Salt, electrolytes and fluids“Going from a crappy high sodium diet to a healthy low sodium one caused a huge crash and worsening of my POTS symptoms this year” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
chronic joint/muscle pain
In context ↗ - Gut problems
Has really helped with nausea and IBS issues too
In context ↗ - Sleep problems
I've had about 5 hours sleep all week lol
In context ↗ - Temperature regulation
I crumble in the heat, especially high humidity!
In context ↗ - Post-exertional malaise
big downside can be feeling like you can do more again and putting yourself in to a crash!
In context ↗