Severe fatigue with long COVID, somewhat better with higher-dose ADHD medication
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 10 months
- Last post
- Mar 2024
In their words
- Condition: Long COVID
long covid was suggested in November when talking to doctor but no test or help for that
In context ↗ - At worst: Severe
10 months of severe fatigue to the point of dropping out of school and being unable to cook
In context ↗ - Now: Somewhat better
has got me to able to sit up all day not really functioning but still better
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They described 10 months of severe fatigue, after a minor infection that caused skin boils. They had dropped out of online classes and could barely cook or charge their phone. A higher dose of ADHD medication let them sit up all day and order groceries, though they still described themselves as not really functioning. They also used a CPAP for sleep apnoea and were advised to take vitamin D and B12.
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What they tried
What they credit
Also tried
Their words about each treatment
- higher ADHD meds · Helped
The higher ADHD med was enough for me to order grocery delivery and put them away, but not much else and has got me to able to sit up all day not really functioning but still better.
In context ↗ - birth control · Not said
PCOS (treated with birth control and normal AC1)
In context ↗ - CPAP · Not said
sleep apnea (with CPAP)
In context ↗
Approaches: Stimulants
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 10 months before March 2024 | severe fatigue began; dropped out of school, unable to cookhave been dealing with 10 months of severe fatigue to the point of dropping out of school and being unable to cookIn context ↗ | Severe |
| 2024-03-22 | higher ADHD medication; able to sit up all day but not functioninghas got me to able to sit up all day not really functioning but still betterIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Brain fog
losing chunks of time and utter blacking out
In context ↗ - Sleep problems
sleep apnea (with CPAP)
In context ↗ - Mast cell (MCAS) & allergies
minor allergies to some fragrances
In context ↗
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