ME/CFS
Mild → no benefit
Exhausted and crashing since childhood with ME/CFS, no improvement from supplements
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Dec 2022
In their words
- Condition: ME/CFS
i’ve seen no improvement of my fatigue. i’ve been like this since i was a child.
In context ↗ - At worst: Mild
barely making it through the day ... i struggle with school & work
In context ↗ - Now: No benefit
i’ve seen no improvement of my fatigue
In context ↗ - Began after: nothing they could name
i’ve been like this since i was a child.
In context ↗
Summary
A 25-year-old single mother had been exhausted since childhood, spending years napping, crashing and struggling through school and work with poor cognition and chronic depression. She had tried supplement after supplement for a couple of years with no improvement and saw no light ahead. Stimulants made her the sickest she had ever been and led to mono. She decided to conserve her energy rather than keep pace with others.
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What they tried
Also tried
supplements· No changestims· Much worse
Their words about each treatment
- supplements · No change
ive been taking supplement after supplement trying to pinpoint the issue for a couple of years. i’ve seen no improvement of my fatigue.
In context ↗ - stims · Much worse
i was on stims for awhile and it made me the sickest i’ve ever been. it eventually lead to me getting mono
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| childhood | illness present since childhoodi’ve been like this since i was a child.In context ↗ | Not stated | |
| — | sickest ever while on stimulants, then got monoi was on stims for awhile and it made me the sickest i’ve ever been. it eventually lead to me getting mono 😪In context ↗ | Not stated | Stimulants (unspecified) |
| 2022-12-27 | venting post: exhausted, depressed, no improvementmy “prime time” years have been spent napping, irritable from the crashing, and barely making it through the day.In context ↗ | Mild | |
| 2022-12-27 | decided to conserve energy; still unimprovedi think i have to accept the fact that i can’t go like everyone else & to conserve my energy.In context ↗ | Mild |
Adverse events
- Stimulants (unspecified)“i was on stims for awhile and it made me the sickest i’ve ever been. it eventually lead to me getting mono” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
i struggle with school & work bc of the affected cognition that comes alongside of fatigue
In context ↗ - Anxiety & low mood
contributes to my chronic depression
In context ↗