Long COVID with crashes and derealization, now near normal after time and vitamin A
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 5 years
- Last post
- Feb 2025
In their words
- Condition: Long COVID
Got worse from 20-21, better in 23-24. The body symptoms go first, neuro symptoms still not 100%.
In context ↗ - Now: Near normal
I am mostly recovered and was slowly starting to get more exercise. I feel healthy but I may need to get back to the doctors to be 100% sure
In context ↗ - Began after: COVID
I think Covid damaged it and it doesn't heal properly, we probably need more nutrients then.
Read from 26 of their posts and comments; links to the 19 this page draws on
Summary
Creek 52545's long COVID began in 2020 and worsened through 2021, with crashes, dry eyes and derealization. From 2023 they improved steadily, crediting mostly time, plus vitamin A, magnesium, cold showers, no caffeine, sleep hygiene, light therapy and a 13-hour fast. By late 2024 they called themself mostly recovered and had resumed exercise, though milder crashes and some neuro symptoms remained.
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What they tried
What they credit
Also tried
Their words about each treatment
- Lactoferrin · Not said
Lactoferrin doesn't do that to me.
In context ↗ - Sport or moving · Worse
Sport or moving doesn't help me at all, it makes it worse.
In context ↗ - Vitamin A · Helped a lot
I take it, and it's helping me a lot. I am less fatiqued, less floaters, eyes aren't that dry.
In context ↗ - Vitamin D · Not said
i have not done the protocol, i only do short time high doses of Vit D.
In context ↗ - Ibuprofen · Not said
I spread it into lower doses (100mg) and took 400mg per day max.
In context ↗ - Light therapy / daylight lamp · Helped
light therapy in the morning. I am also dreaming again and less fatigued.
In context ↗ - Cold showers · Helped a lot
Cold showers helped me a lot. I will do them for the rest of my life!
In context ↗ - 0 caffeine · Helped
for me it got better when going 0 caffeine
In context ↗ - Sleep hygiene · Helped
sleep hygene (going to bed and waking up at the same time the whole week)
In context ↗ - 13 hour fast · Helped
I do 13 hours fast and I feel great
In context ↗ - Probiotic food · Helped
For me personally vitamins, probiotic food and cold showers work good.
In context ↗ - Magnesium · Helped
I didn't test, but i had all the symptoms, if i stop taking it (around 1g per day) my symptoms return after a week or two.
In context ↗ - Lithium orotate · Not said
It might be something else, i don't have issues with it.
In context ↗ - Copper, iodine and selenium · Helped
I noticed a difference with copper, iodine and selenium too.
In context ↗ - Thiamine · No change
Didn't do anything for me.
In context ↗
Approaches: Alternative therapies · Diet · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | long COVID beganGot worse from 20-21, better in 23-24.In context ↗ | Not stated |
| 2021 | got worse through 2021 | Not stated |
| 2023-2024 | body symptoms went, neuro symptoms lingeredGot worse from 20-21, better in 23-24. The body symptoms go first, neuro symptoms still not 100%.In context ↗ | Mild |
| 2024 summer | managed a hard hiking trip; baseline still improvingMy baseline is improving year after year. I still get crashes ofc but way milder. This summer I went on a hard hiking trip. I think next summer I will be always at 95% or more.In context ↗ | Mild |
| 2024-12-21 | mostly recovered, slowly increasing exerciseI am mostly recovered and was slowly starting to get more exercise. I feel healthy but I may need to get back to the doctors to be 100% sureIn context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I still get crashes ofc but way milder
In context ↗ - Vision problems
So I have very dry eyes which probably lead to my tunnel vision/derealization.
In context ↗ - Sleep problems
Yep, for me it got better when going 0 caffeine, sleep hygene (going to bed and waking up at the same time the whole week) and light therapy in the morning.
In context ↗ - Pain & fibromyalgia
Sport or moving doesn't help me at all, it makes it worse.
In context ↗ - Heart symptoms & palpitations
Had the same, i think it's inflammation/ mucosa damage of the upper GI-tract.
In context ↗ - Anxiety & low mood
Yup, but the days that I feel normal keep me going.
In context ↗
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