Long COVID for two years, at worst could only get takeout, now much better with PEMF
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- Aug 2026
In their words
- Condition: Long COVID
I hope more long haulers discover this and see benefits.
In context ↗ - At worst: Severe
Before: only takeout, walking across my apartment felt tiring, could not take public transit
In context ↗ - Now: Much better
I am not recovered but have a bigger energy envelop.
In context ↗
Read from 12 of their posts and comments; links to the 9 this page draws on
Summary
Ill with long COVID for about two years, Crane 23259 at worst could only get takeout, found walking across the apartment tiring and could not use public transit. PEMF (P9 device, worn 8-10 hours daily), started January 2026, brought dramatic improvement: work over an hour, a six-hour workshop, travel with pacing. PEM persisted but milder and harder to trigger; by June 2026 they still were not recovered.
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What they tried
What they credit
Also tried
Their words about each treatment
- relatively low temp sauna · Helped
doing a few rounds in a relatively low temp sauna didn't cause a crash and is still incredibly relaxing
In context ↗ - ketamine · Helped
For me it causes PEM for 2-3 days and then better energy envelope the week following. Makes it tricky to time
In context ↗ - agmatine sulfate · Helped
I hadn't realized how much this one thing was helping prop up a big part of my physical ability by helping with pain
In context ↗ - Red Reishi extract · Helped
Red Reishi extract has made a big difference in sleep quality for me
In context ↗ - LDN · Not said
more so than LDN or any supplement
In context ↗ - PEMF therapy (P9 from Micro-pulse) · Helped a lot
baseline remains dramatically improved, but I still experience PEM. But can do much more than before before triggering it
In context ↗ - pacing · Not said
if I have a full spoon I can do homemade simple dishes with pacing
In context ↗
Approaches: Alternative therapies
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | fell ill, unable to do things for two yearsthings this week I haven't been able to do in two yearsIn context ↗ | Moderate | |
| January 2026 | mostly housebound before PEMFBefore: only takeout, walking across my apartment felt tiring, could not take public transitIn context ↗ | Severe | |
| 2026-01-24 | profound improvement after starting PEMFI've been doing all sorts of things this week I haven't been able to do in two years, like take public transit, work for more than an hour, walk around a museum for an afternoon, participate in a six-hour workshop (!!)In context ↗ | Mild | PEMF |
| 2026-02-08 | PEM after 3 days of a 4-hour commute and 6-hour work daysthis week I finally hit a limit and am experiencing some PEM this weekend. This is after 3 days of a 4-hour commute and 6-hour days of workIn context ↗ | Mild | |
| 2026-06-09 | baseline dramatically improved but still not recoveredbaseline remains dramatically improved, but I still experience PEM ... I am not recovered but have a bigger energy envelop | Mild | PEMF |
Adverse events
- Ketamine“though I don't crash the next day I am slower so I save it for Fridays/Saturdays” In context ↗ Side effects
- Ketamine“For me it causes PEM for 2-3 days and then better energy envelope the week following.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
It’s made a huge difference for me re: PEM severity and duration
In context ↗ - Pain & fibromyalgia
one to two weeks off of agmatine sulfate, and I was having debilitating muscle pain
In context ↗ - Sleep problems
Red Reishi extract has made a big difference in sleep quality for me
In context ↗
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