Aron’s Chronic Fatigue Syndrome 90% Recovery Story!
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving
- Not stated
- Published
- No date given
In their words
- Condition: ME/CFS
they were diagnosed with chronic fatigue syndrome about a year ago
Watch the video ↗From the video’s captions - At worst: Moderate
planning about a 72-hour window around like any single errand or activity
Watch the video ↗From the video’s captions - Now: Near normal
you're calling yourself optimistically about 90 recovered
Watch the video ↗From the video’s captions - Began after: stress or burnout
for me it was definitely a series of stressors
Summary
Aron has had chronic fatigue syndrome for about three years, beginning with a fast decline after a series of stressors. At the worst point they were getting about two hours of sleep a night and planned each errand around 72-hour rest windows. They credit pacing, a plant-based diet, vitamin D and iron, and describe themselves as optimistically about 90% recovered, though focus and sleep are not yet where they want them.
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What they tried
What they credit
Also tried
Their words about each treatment
- booking time off work and resting · No change
i'll book some time off work i'll take a long vacation and rest
Watch the video ↗From the video’s captions - returning to swimming with fewer laps · Worse
i'll do fewer laps and see how it goes but it never went well
Watch the video ↗From the video’s captions - pacing · Helped a lot
pacing strategies definitely were very very significant for me
Watch the video ↗From the video’s captions - naturopath visits · No change
i saw a naturopath for like eight or ten months
Watch the video ↗From the video’s captions - other supplements explored with naturopath · No change
we explored lots of supplements i don't think anything really specifically stood out for me
Watch the video ↗From the video’s captions - vitamin D · Helped
other than vitamin d and iron ... and it did help a bit
Watch the video ↗From the video’s captions - daily animal protein (fish or chicken) · Helped
as soon as i started doing that i noticed a difference it was very undeniable
Watch the video ↗From the video’s captions - plant-based diet · No change
i know i know like plant plant-based works for a lot of people but that was not working for me
Watch the video ↗From the video’s captions - Facebook support group · Helped
finding your support group on on facebook
Watch the video ↗From the video’s captions - reflecting on values and self-worth · Helped
reevaluating what like my values are and what self self-worth means to me
Watch the video ↗From the video’s captions
Approaches: CBT & mindset · Diet · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| about three years ago | steep decline over about three months after a series of stressorsover the course of about three ish months like there was a pretty steep decline in in my healthWatch the video ↗From the video’s captions | Not stated | |
| first four or five months | two hours of sleep a night, rest days around every errandit was like planning about a 72-hour window around like any single errand or activityWatch the video ↗From the video’s captions | Moderate | |
| 8 mo | could do one or two things a day with pacingi can do one thing a day uh i can do two things a day if i don't do them back to back like it definitely changed and got betterWatch the video ↗From the video’s captions | Mild | Pacing and the energy envelope |
| about three years in | about 90% recovered, able to plan ahead againyou're calling yourself optimistically about 90 recoveredWatch the video ↗From the video’s captions | Near normal |
Adverse events
- Everyday exercise and activity“but it never went well” Watch the video ↗From the video’s captions Made symptoms worse
- “getting me into trouble like bringing on crashes” Watch the video ↗From the video’s captions Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
the pem like the fatigue
Watch the video ↗From the video’s captions - Brain fog
experiencing like head fog
Watch the video ↗From the video’s captions - Sleep problems
battling just like wicked insomnia
Watch the video ↗From the video’s captions - Headaches & migraine
i had chronic headaches as well
Watch the video ↗From the video’s captions - Light & noise sensitivity
any kind of stimulation was painful
Watch the video ↗From the video’s captions
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