Long COVID fatigue and skin flares, somewhat better with low-dose naltrexone and creatine
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3.5 years
- Last post
- Sep 2026
In their words
- Condition: Long COVID
after years of LC
In context ↗ - At worst: Moderate
Was it useful to have a doctor writing an official report so I can start applying for disabilities ? Yes
In context ↗ - Now: Somewhat better
What helped me to get better : fixing microbiome, creatine, ldn, cold baths / showers.
In context ↗ - Began after: COVID
I stopped this treatment only few months before getting infected by COVID
Read from 11 of their posts and comments; links to the 10 this page draws on
Summary
Swan 98098 developed long COVID after a COVID infection, with fatigue and a flare of their Verneuil skin disease, and was ill for over two years; half a pint could put them in bed for 15 days. From 2026 low-dose naltrexone, creatine, microbiome work and cold showers helped, though it was not a linear process; by July 2026 they had never felt so hopeful of having a life again.
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What they tried
Also tried
Their words about each treatment
- anti tnf-alpha · Helped
had to take anti tnf-alpha which are basically immune suppressors to cure it
In context ↗ - Eating a lot more fiber everyday · Helped
Eating a lot more fiber everyday improved the quality of my stools, (less yellowish / loose)
In context ↗ - curacne · Not said
today I'm on 10mg curacne to treat the acne deep down and avoid flare-ups
In context ↗ - returning to France · Helped
My inflammatory lesions diminished again when I returned to France after spending two years in Canada
In context ↗ - ldn · Helped a lot
I felt like shit during the adaptation phase (way more fatigue) but when it started kicking it, it did wonders
In context ↗ - Creatine · Helped a lot
Creatine is 30% of my recovery progresses
In context ↗ - cold baths / showers · Helped
What helped me to get better : fixing microbiome, creatine, ldn, cold baths / showers.
In context ↗
Approaches: Alternative therapies · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 18 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| about 2023 | Long COVID after a COVID infection; fatigue began as the Verneuil skin lesions flaredstarted to have abces again exactly at the same time my fatigue startedIn context ↗ | Not stated | |
| 2024-10 | crashed into bed for 15 days after half a pint of beer; later sought a disability reportOne half of a pint is enough to send me in my bed for 15 daysIn context ↗ | Moderate | |
| 2026-07-11 | felt hopeful for the first time after six months on LDNI've started ldn 6 months ago and i can say after years of LC that i've never felt so hopefull about having a life againIn context ↗ | Moderate | Low-dose naltrexone |
| 2026-09-04 | still getting better with microbiome work, creatine, LDN and cold showersWhat helped me to get better : fixing microbiome, creatine, ldn, cold baths / showers.In context ↗ | Moderate | Creatine |
Adverse events
- Low-dose naltrexone“I felt like shit during the adaptation phase (way more fatigue)” In context ↗ Made symptoms worse
- Creatine“mostly staying at 6 but i take breaks sometimes because i look puffy because of it” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Gut problems
Eating a lot more fiber everyday improved the quality of my stools, (less yellowish / loose)
In context ↗
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