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ME/CFS Mild → no benefit

Mild ME/CFS, still recovering from a bad crash, pregabalin made brain fog worse

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
Nov 2021
In their words
  • Condition: ME/CFSI have mild CFS which I am learning to manage In context ↗
  • At worst: MildI know I am lucky I am not completely bed bound and can still work, albeit reduced hours and from home. In context ↗
  • Now: No benefitThis very non-crazy night out caused the worst crash I have ever experienced, which I am still recovering from with no signs of improvement yet. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Crane 72351 described having mild CFS, made worse by a long period of pushing through, and was still recovering from the worst crash they had experienced after a night out at the pub in late 2021. They could still work reduced hours from home and were not bedbound, though they had no social life. Pregabalin made brain fog worse but eased anxiety, headaches and sleep somewhat.

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What they tried

Also tried

Pregabalin· Helpedpushing through· Much worse
Their words about each treatment
  • pushing through · Much worseI spent a long time 'pushing through' which obviously didn't help and made me deteriorate In context ↗
  • Pregabalin · HelpedI was given it and it made me feel better in some ways but not others- brain fog got way worse ... I found it helped with headaches and made sleep slightly more restful In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—mild CFS, pushing throughI have mild CFS which I am learning to manage In context ↗Mild
—deteriorated after a long period of pushing throughI spent a long time 'pushing through' which obviously didn't help and made me deteriorate In context ↗Mild
2021-11worst crash ever after a night out at the pubThis very non-crazy night out caused the worst crash I have ever experienced In context ↗Mild
2021-11-25still recovering, on pregabalinbrain fog got way worse but the anti-anxiety effects of pregabalin made me not too bothered about it In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseThis very non-crazy night out caused the worst crash I have ever experienced In context ↗
  • Brain fogbrain fog got way worse In context ↗
  • Headaches & migraineI found it helped with headaches In context ↗
  • Sleep problemsmade sleep slightly more restful In context ↗
  • Anxiety & low moodthe anti-anxiety effects of pregabalin made me not too bothered about it In context ↗

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