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Long COVID Severe → no benefit

Bedridden with long COVID and a herniated disc, pool water brought a PEM flare, no improvement

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill for
Not stated
Last post
May 2025
In their words
  • Condition: Long COVIDI somehow managed to forget that it would flare up my LC the next day In context ↗
  • At worst: SevereI have been basically bed ridden for the last 4 months due to a bad herniated disc In context ↗
  • Now: No benefitI over exerted myself yesterday for the first time in a while and now i’m paying the price. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A Reddit user with long COVID had been bedridden for four months with a herniated disc when, in May 2025, they went to an indoor pool to ease their back. The water helped their back but brought on a PEM flare the next day: feverish, aching, exhausted and sick-feeling, with health anxiety making it harder. They coped with "body cleansing" guided meditations, which they doubted did anything but said gave a better mindset.

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What they tried

Also tried

Their words about each treatment
  • local indoor pool · WorseWhile it did help my back, I somehow managed to forget that it would flare up my LC the next day. In context ↗
  • “body cleansing” guided meditations · No changeI do the same thing but with “body cleansing” guided meditations. i’m sure it does nothing but maybe it at least gives me a better mindset In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
last 4 monthsbed ridden with a herniated discI have been basically bed ridden for the last 4 months due to a bad herniated disc In context ↗Severe
2025-05-06PEM flare after an indoor pool visitI over exerted myself yesterday for the first time in a while and now i’m paying the price In context ↗Severe
2025-05-06still in a PEM flare, feverish, aching and exhaustedhere I am now feeling feverish, having muscle aches, completely exhausted, and just an overall sick feeling In context ↗Severe

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI somehow managed to forget that it would flare up my LC the next day In context ↗
  • Flu-like symptomsfeeling feverish, having muscle aches, completely exhausted, and just an overall sick feeling In context ↗
  • Pain & fibromyalgiahaving muscle aches In context ↗
  • Anxiety & low moodI have health anxiety so I get super anxious whenever this happens In context ↗

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