ME/CFS
Moderate → relapsed
ME/CFS: barely functional and unable to work again after improving
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Nov 2025
In their words
- At worst: Moderate
Back to being unable to work and barely functional. At least I’m not bed bound.
In context ↗ - Now: Relapsed
Had a good few years. Ended up working 4 days a week at an easy job and it burnt me out with the stress of life. ... Back to being unable to work and barely functional.
In context ↗
Summary
Shore 50482 had a good few years in which they worked four days a week at an easy job, until the stress of life burnt them out and over more than a year they slid back to being unable to work and barely functional, though not bedbound. A Covid infection in late 2025 took them from mostly able to work part time to unable to work, and they wish they had got that year's booster. They say past boosters might have given them mild symptoms for a day or two and a sore arm.
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What they tried
Also tried
Their words about each treatment
- Covid booster vaccine · No change
90% of my boosters in the past might have had mild symptoms for a day or two and a sore arm. They’re worth it
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | had a good few years and worked four days a week at an easy jobHad a good few years. Ended up working 4 days a week at an easy jobIn context ↗ | Mild |
| 2025 | burnt out by the stress of life, declined slowly over more than a yearit burnt me out with the stress of life ... It took over a year of slow burn but it got me againIn context ↗ | Moderate |
| October 2025 | Covid infection left them unable to workGot Covid a few weeks ago and went from mostly able to work part time while disabled to unable to work from my disabilities.In context ↗ | Moderate |
| 2025-11-12 | unable to work and barely functional, but not bedboundBack to being unable to work and barely functional. At least I’m not bed bound.In context ↗ | Moderate |
Adverse events
- COVID vaccination as treatment“90% of my boosters in the past might have had mild symptoms for a day or two and a sore arm.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
I didn’t notice it was happening due to amnesia.
In context ↗