Miruvor
Sign up
ME/CFS Mild → relapsed

ME/CFS fatigue and poor concentration briefly improved on B12/D supplements, then relapsed

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill before improving or writing
Not stated
Last post
Apr 2025
In their words
  • Condition: ME/CFSI am experiencing a very similar situation. In context ↗
  • At worst: Mildactive situations such as taking a shower or walking outside seem to improve this a little In context ↗
  • Now: Relapsedthis situation miraculously resolved in 1 day ... but the effect was not permanent In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

Request to remove this story

Summary

The user described being very tired during the day, unable to fall asleep despite waking after about nine hours, with burning eyes and difficulty thinking; they can think more clearly in the shower, and active situations like walking outside improve things a little. Supplements taken for vitamin B12 and D deficiency resolved the tiredness within a day, but the effect did not last. At the latest post the daytime fatigue and poor concentration remained.

Ask Miruvor AI

Asking aboutLynx 97884’s story

What they tried

Their words about each treatment
  • supplements for vitamin B12 deficiency · Helped a lotI took supplements for a while due to vitamin B12 and D deficiency, and this situation miraculously resolved in 1 day In context ↗

Approaches: Supplements

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
—developed daytime exhaustion, burning eyes and trouble thinkingFrom the moment I wake up, my eyes feel like they are burning, but I can't fall asleep again In context ↗Mild
—supplements cleared the tiredness within a dayI took supplements for a while due to vitamin B12 and D deficiency, and this situation miraculously resolved in 1 day. I wasn't tired and I had energy to do everything during the day In context ↗Near normalVitamin B12
—supplement benefit wore offbut the effect was not permanent In context ↗Mild
2025-04-09still tired in the day and unable to think clearlyEven though I feel very tired during the day, I can't sleep In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsmy eyes feel like they are burning, but I can't fall asleep again (I usually wake up on my own after 9 hours) In context ↗
  • Brain fognormally when I close my eyes and try to think about something, I can't do it In context ↗

Ask Miruvor AI

Asking aboutLynx 97884’s story

Similar stories

  • Long COVID at its worst mostly lying down, now nearly back to normal with Zepbound

    Near normal Alpine 44425 Long COVID Severe at worstIll 2 years before improving or writing reddit.com Oct 2026

    Ill with long COVID from July 2024; at worst sleeping or lying down most of the day, barely functioning, with fatigue, PEM, brain fog, palpitations and POTS. Antihistamines and supplements raised energy within a week, and nattokinase, bromelain and curcumin…

  • Mod-severe ME/CFS, mostly bed bound, small gains from rest and iron then relapse

    Relapsed Hare 67481 ME/CFS Severe at worstIll 26 years before improving or writing reddit.com Oct 2026

    They fell ill with ME/CFS in May 2000 aged 17 and were hospitalised, then stayed mild for about 15 years. Rest at their parents' with NT Factor, vitamin D, B12 injections and diet brought a two-year remission that flu and overdoing it ended. Covid and…

  • Largely bedbound with ME/CFS, improved on ivabradine and LDN then relapsed

    Relapsed Oak 32031 ME/CFS Severe at worstIll 16 years before improving or writing reddit.com Oct 2026

    Oak 32031 was diagnosed with ME/CFS in 2008 at age 20 and declined from mild to severe, becoming largely bedbound, using a powerchair outdoors and giving up work in 2015. Methylation supplements gave early gains; much later ivabradine for POTS and low-dose…

  • Bedbound with ME/CFS after COVID, some improvement with low-dose naltrexone and ivabradine

    Somewhat better Crocus 16327 ME/CFS Severe at worstIll 15 years before improving or writing reddit.com Oct 2026

    She had 15 years of gradual ME/CFS symptoms with teenage EBV and crashes during her PhD, then became bedbound after COVID in early 2024. Diagnosed with ME/CFS, POTS, MCAS and hEDS in 2025, she credits low-dose naltrexone, ivabradine, H1/H2 antihistamines and…

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime