Long COVID: two years of dysautonomia and suicidal thoughts, now partly better after LDN
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- May 2026
In their words
- Condition: Long COVID
Long Covid almost completely destroyed my life
In context ↗ - At worst: Moderate
took a year of sabbatical
In context ↗ - Now: Somewhat better
After 3 years, I'm about 70 percent healed from LC.
In context ↗ - Began after: COVID
Long Covid almost completely destroyed my life
In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on
Summary
After getting long COVID they spent roughly two years in what they called hell, with dysautonomia and suicidal thoughts, and a year off work on sabbatical. Supplements, diet changes, rest, LDN, a stellate ganglion block, neurofeedback, somatics, fasting and ayahuasca were what they credited. By late 2025 they could just about work an eight-hour day most days, resting one weekend day, and by 2026 reported being about 70% healed, though still well short of their old self.
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What they tried
What they credit
Also tried
Their words about each treatment
- supplements · Helped
tons of supplements, rest, neurofeedback, somatics, LDN, ayahuasca have all contributed
In context ↗ - complete change of diet · Helped
Change of diet, fasting, tons of supplements, rest, neurofeedback, somatics, LDN, ayahuasca have all contributed
In context ↗ - extreme rest · Helped
extreme rest, low dose naltrexone, complete change of diet
In context ↗ - low dose naltrexone · Helped
rest, neurofeedback, somatics, LDN, ayahuasca have all contributed
In context ↗ - getting 8-10 hours of sleep consistently · Helped
getting 8-10 hours of sleep consistently
In context ↗ - stellate ganglion block · Helped
a stellate ganglion block, vybanze, and neurofeedback
In context ↗ - Somatic experiencing · Helped
Somatic experiencing, letting it all out, extreme rest
In context ↗
Approaches: Diet · Other drugs and medicines · Radical rest · Stimulants · Trauma & somatic work
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 2 years after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2021 | long COVID beganIt’s been a 5 year journey.In context ↗ | Not stated |
| 2021-2022 | deepest point: dysautonomia, suicidal thoughts, a year of sabbatical off workI almost wanted to off myself in the depths of my long covid hell.In context ↗ | Moderate |
| 2023 (about 2 years in) | about 70% better after supplements, alternatives, diet and lifestyle changesIt took me 2 years to get about 70% betterIn context ↗ | Mild |
| 2025-11-29 | able to work an eight-hour day most days, resting one weekend dayI can just about work an 8 hour day most days without crashingIn context ↗ | Mild |
| 2026-05-10 | about 70% healed, five years in; still watching sleep, stress, supplements and dietAfter 3 years, I’m about 70 percent healed from LC.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I got dysautonomia & had a hijacked nervous system.
In context ↗ - Anxiety & low mood
Facing how negative and mean and depressed and hopeless I’ve become.
In context ↗ - Post-exertional malaise
I can just about work an 8 hour day most days without crashing
In context ↗
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