ME/CFS
Severe → much betterIll 2 years before improving or writing
Bedbound by ME/CFS, now much better and living an active life after POTS improved
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- Oct 2022
In their words
- Condition: ME/CFS
I have (had) CFS as a symptom of another chronic illness.
In context ↗ - At worst: Severe
I went from bedbound to now living an active life.
In context ↗ - Now: Much better
I went from bedbound to now living an active life.
In context ↗
Summary
Crest 77912 developed CFS as a symptom of another chronic illness and spent two years really sick, was bedbound, lost everything and spent an insane amount of money. Something 'just clicked' and they began to improve, without crediting any single treatment. By 2021 they were working and in a relationship but exhausted every evening and in bed most weekends; by late 2022 they described living an active life after their POTS improved.
Ask Miruvor AI
What they tried
Also tried
treating POTS/BP· Helpedthem (product for daily overstimulation and sleep)· No change
Their words about each treatment
- them (product for daily overstimulation and sleep) · No change
I have them and haven’t noticed much of a difference
In context ↗ - treating POTS/BP · Helped
as my POTS improved and physical condition got better so did my CFS
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | CFS began as a symptom of another chronic illnessI have (had) CFS as a symptom of another chronic illness.In context ↗ |
| — | bedbound for two years and lost everythingI spent two years really sick and lost literally everything. Everything. Gone.In context ↗ |
| 2021-02-06 | started to get better and stronger; working but exhausted every evening and in bed most weekendsI work and have a relationship, but am often so exhausted and overdone every evening that I sob on the way home and am basically unable to speak. I spend most weekends in bed.In context ↗ |
| 2022-10-21 | living an active life as POTS improvedI went from bedbound to now living an active life.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
am often so exhausted and overdone every evening that I sob on the way home
In context ↗ - Brain fog
Brain fog is real.
In context ↗ - POTS & dysautonomia
as my POTS improved and physical condition got better so did my CFS
In context ↗