Years of tiredness and exercise intolerance in ME/CFS, improved off running then relapsed
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Feb 2022
In their words
- Condition: ME/CFS
How do you cope with stress on CFS?
In context ↗ - At worst: Mild
For years, something about my life felt off. I was always tired. ... I decided to stop exercise (which, for me, was 2x5km weekly run).
In context ↗ - Now: Relapsed
After about 2-3 weeks I started to feel great ... I went for a run ... 3 days after, my legs felt like on fire
In context ↗ - Began after: nothing they could name
For years, something about my life felt off. I was always tired.
In context ↗
Summary
For years they felt tired and something was off, while working remotely and running 5 km twice weekly. Stopping exercise around Christmas 2021 left them feeling great within two to three weeks, but a run after a stressful work presentation brought burning legs that took at least a week to settle. Hot baths wiped them out for two days and a 12 km run cost them dearly. By February 2022 they were considering settling for 0-2 km runs.
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What they tried
What they credit
Also tried
Their words about each treatment
- running (2x5km weekly) · Worse
so I went for a run ... 3 days after, my legs felt like on fire
In context ↗ - stopping exercise · Helped a lot
Starting christmas 2021, I decided to stop exercise ... After about 2-3 weeks I started to feel great
In context ↗ - hot baths · Worse
Whenever I do them, I feel like death ... which wiped me out for 2 days entirely.
In context ↗ - TRX · Not said
I got TRX at home ... I can't bring myself to do it regularly though
In context ↗ - meditation and yoga · Not said
I only found meditation as an alternative, but I can't really "meditate away" things
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | years of feeling tired and off, while working and runningFor years, something about my life felt off. I was always tired.In context ↗ | Mild | |
| Christmas 2021 | stopped running and started feeling greatAfter about 2-3 weeks I started to feel greatIn context ↗ | Near normal | Pacing and the energy envelope |
| early 2022 | crashed after a run following a stressful work presentation3 days after, my legs felt like on fireIn context ↗ | Mild | |
| early 2022 | ran 12km instead of 5 and paid dearlyI got carried away and did 12km instead of 5 one day - I paid dearly for that mistakeIn context ↗ | Mild | |
| early 2022 | hot bath wiped them out for two daysmy hot bath experience, which wiped me out for 2 days entirelyIn context ↗ | Mild | |
| 2022-02-08 | still exercising and crashing, considering much shorter runsMaybe it's time to settle for 0-2K 😕In context ↗ | Mild |
Adverse events
- Hyperthermia and sauna“Whenever I do them, I feel like death ... which wiped me out for 2 days entirely ... I feel like I have fever for days after that.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
3 days after, my legs felt like on fire (it also feels like there is no joy in world). This then takes at least a week to fully resolve.
In context ↗ - Pain & fibromyalgia
my legs felt like on fire
In context ↗ - Temperature regulation
I feel like I have fever for days after that.
In context ↗
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