ME/CFS
Severe → much betterIll 7 years before improving or writing
Mostly in bed with ME/CFS since teen years, now much better
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 7 years
- Last post
- Dec 2023
In their words
- At worst: Severe
Ive already spent most of my Time in bed since age 17 when I first got sick
In context ↗ - Now: Much better
Ive been doing quite well lately and have been the most active since age 18 or so in the last couple months
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 24-year-old man in Canada ill since age 17, mostly in bed since then, said he had been doing quite well for a couple of months in late 2023, the most active he had been since 18, while recovering from malnutrition from celiac disease; his fatigue was less severe. Attempting roundhouse kicks, he pulled something badly enough to need an ambulance and expected another week or more in bed. He warned others to take exercise slowly.
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What they tried
Also tried
dance and martial arts· Much worsemethoxyflurane· Not saidnitrous· Not saidmorphine· Not saidclonazepam· Not said
Their words about each treatment
- dance and martial arts · Much worse
I was doing some dance and martial arts, and I a ttempted some roundhouse kicks.
In context ↗ - methoxyflurane · Not said
EMTs had to give me methoxyflurane just to move me
In context ↗ - nitrous · Not said
then nitrous on the ambulance ride
In context ↗ - morphine · Not said
eating morphine and clonazepam
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 17 | got sick in his teens; mostly in bed from then onIve already spent most of my Time in bed since age 17 when I first got sickIn context ↗ | Severe |
| late 2023 (last couple months) | doing quite well, most active since age 18, fatigue less severeIve been doing quite well lately and have been the most active since age 18 or so in the last couple monthsIn context ↗ | Mild |
| a couple of nights before 2023-12-01 | pulled a muscle attempting roundhouse kicks; ambulance and scan, back in bedI will have to spend another week + in bed while this healsIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
I was delerious with pain
In context ↗