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Long COVID No benefit

Long COVID with fatigue, brain fog and dizziness; no improvement after supplements

Condition
Long COVID
At worst
Not stated
Ill for
Not stated
Last post
Dec 2024
In their words
  • Condition: Long COVIDr/covidlonghaulers In context ↗
  • Now: No benefitI didn't recover. In context ↗
  • Began after: COVIDMy symptoms are fatigue, terrible memory, brain fog, nasal mucus build up overnight, dizziness, chest pain that comes and goes, nausea. In context ↗
Read from 17 of their posts and comments; links to the 15 this page draws on

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Summary

A long-COVID patient with fatigue, brain fog, poor memory, dizziness, chest pain and nausea tried a long series of supplements. Nattokinase, anthocyanins and the antihistamine Bilaxten each helped for a time but the benefits faded, and 5-HTP, the best help for fatigue, also stopped working. High-dose B1 and B3 improved energy and cognition, though B1 made bad days worse. Still not recovered.

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What they tried

Their words about each treatment
  • Black elderberry (anthocyanins) · HelpedBlack elderberry (anthocyanins) is the only thing that helped me, but the benefits somehow don't last for very long. In context ↗
  • Nattokinase · HelpedThe only things that helped me somewhat so far are Nattokinase and Anthocyanin. In context ↗
  • Melatonin · HelpedI'm not a fan of taking melatonin at all, but I started taking it as well and it also seems to help. In context ↗
  • 72h water fasts · No changeI did two 72h water fasts, but didn't really notice a difference. In context ↗
  • Bilaxten · HelpedBilaxten greatly reduced my fatigue for a few weeks and is pretty much the only thing that noticeably helped me. Now it does nothing any more. In context ↗
  • Zyrtec · No changeZyrtec (taken in the evening) and quercetin didn't have this effect on me. In context ↗
  • vitamin c complex · HelpedI had it, and vitamin c complex (not ascorbate or ascorbic acid) helped. In context ↗
  • 5-HTP · Helped5-HTP definitely helped with fatigue and a bit with my memory and brainfog. In context ↗
  • N-Acetyl-L-Tyrosine · HelpedI took 5-HTP and N-Acetyl-L-Tyrosine together. I only saw benefits when I took it in the morning. In context ↗
  • Colostrum · No changeI bought 200g but didn't notice any changes. In context ↗
  • Nicotine patches · No changeNo benefits from the nicotine and enzymes. In context ↗
  • nicotine pouches · WorsePouches give me all sorts of side effects, but they are cheaper. In context ↗
  • bromelain · No changeI'm combining it with nattokinase and bromelain, but so far no benefits after 2 weeks. In context ↗
  • niacinamide · HelpedI started taking 500mg of niacinamide, 600mg of benfotiamine, and 500mg of thiamine mononitrate, and I can already feel improvements in energy and cognition. In context ↗
  • benfotiamine and thiamine mononitrate · HelpedI started taking B1, and it makes my good days better, but my bad days worse. In context ↗
  • B-complex · Not saidMind you, I've been taking a B-complex for years and wasn't deficient when I last tested. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
onsetlong COVID with fatigue, brain fog, memory loss, dizziness, chest pain, nauseaMy symptoms are fatigue, terrible memory, brain fog, nasal mucus build up overnight, dizziness, chest pain that comes and goes, nausea. In context ↗Mild
2023-05-01nattokinase and anthocyanins helped somewhatThe only things that helped me somewhat so far are Nattokinase and Anthocyanin. In context ↗Mild
2023-05-28Bilaxten halved fatigue by letting them sleep through the nightBilaxten cuts my fatigue in half by allowing me to sleep through the night In context ↗Mild
2023-07-13antihistamine stopped working, fatigue returnedBilaxten greatly reduced my fatigue for a few weeks and is pretty much the only thing that noticeably helped me. Now it does nothing any more. In context ↗Mild
2024-03-295-HTP helped fatigue and a bit with memory and brain fog5-HTP definitely helped with fatigue and a bit with my memory and brainfog. In context ↗Mild
2024-08-315-HTP stopped workingSadly, it stopped doing anything for me. In context ↗Mild
2024-11-28high-dose B3 and B1 improved energy and cognitionI can already feel improvements in energy and cognition. In context ↗MildThiamine / benfotiamine
2024-12-19B1 helps good days but makes bad days worse; no benefit from nicotine and enzymesNo benefits from the nicotine and enzymes. But I started taking B1, and it makes my good days better, but my bad days worse. In context ↗Mild

Adverse events

  • 5-HTP“Initially, I took it right before bed, probably like most people, and it made sleep impossible.” In context ↗ Insomnia from treatment
  • 5-HTP“If I take it in the late afternoon, it makes sleep much more difficult.” In context ↗ Insomnia from treatment
  • Nicotine patches“The only side effects I get from patches are vivid dreams and sometimes some redness on my skin.” In context ↗ Side effects
  • Thiamine / benfotiamine“But I started taking B1, and it makes my good days better, but my bad days worse.” In context ↗ Made symptoms worse

Symptoms mentioned

Their words about their symptoms
  • Brain fogMy symptoms are fatigue, terrible memory, brain fog, nasal mucus build up overnight, dizziness, chest pain that comes and goes, nausea. In context ↗
  • Heart symptoms & palpitationschest pain that comes and goes In context ↗
  • Sleep problemsYesterday I couldn't even sleep until 7 am and I woke up at 1 pm which is insane, didn't even need a nap. In context ↗

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