ME/CFS fatigue limiting gym and shops, somewhat better after strict diet and juice cleanses
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 9 years
- Last post
- Jul 2019
In their words
- Condition: ME/CFS
chronic fatigue and all this is BS isn’t me being crazy or ‘weak.’
In context ↗ - At worst: Mild
pretty much impossible to be proactive to go to the gym and store without adderall
In context ↗ - Now: Somewhat better
Diet really has been the only thing so far that makes a noticeable difference too, but nothing’s a miracle diet or fixes it.
In context ↗ - Began after: glandular fever or EBV
Mine (27/F) also started shortly after a bout with mono and full blown shingles when I was 18
In context ↗
Summary
Fell ill at 18 after mono and shingles and was 27, living in the US, when she wrote. She could get to the gym and shops only with Adderall, and said a strict gastritis diet and raw juice cleanses gave a little more energy while kratom was only "eh". Her depression had improved somewhat, but she still woke several times a night and remained limited by fatigue.
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What they tried
What they credit
Also tried
Their words about each treatment
- adderall · Helped
Same. A combo of XR and instant release has seemed best.
In context ↗ - Kratom · No change
Kratom is just “eh” for me, but if you have pain as well then it’s probably worth it.
In context ↗ - super strict diet for gastritis · Helped
I will say that I had to go on a super strict diet for gastritis, and that surprisingly helped a decent amount too.
In context ↗ - raw juice cleanses · Helped
I’ve done a few raw juice cleanses, which I recommend if you can afford. Not a cure but I notice a tad more energy.
In context ↗ - antidepressants · Worse
I stopped mine because I started to feel like a zombie, but I didn’t have a noticeable change that I’m aware of.
In context ↗ - being healthy and active · Helped
The only thing I’ve really noticed that helps with natural energy is being healthy and active
In context ↗ - staying awake instead of going back to sleep · Helped
have been experimenting with just staying awake instead of going back to sleep ... I’ve had a couple of those days be better than normal
In context ↗ - seasons and sunshine · Helped
the seasons and sunshine make a huge difference
In context ↗
Approaches: Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 9 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| age 18 | became ill after mono and shinglesMine (27/F) also started shortly after a bout with mono and full blown shingles when I was 18In context ↗ | Not stated | |
| 2019-07 | strict gastritis diet gave a decent improvementI had to go on a super strict diet for gastritis, and that surprisingly helped a decent amount tooIn context ↗ | Mild | Elimination diets (other) |
| 2019-07-10 | still needs Adderall to get out to the gym or shops; depression a little betterbuuuut that’s pretty much impossible to be proactive to go to the gym and store without adderallIn context ↗ | Mild |
Adverse events
- Antidepressants (unspecified)“I stopped mine because I started to feel like a zombie ... (brain fog, robotism, depersonalization)” Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
Depression is a fucking bitch. Mines finally getting a little better, but it was bad for a while.
In context ↗ - Sleep problems
I also wake up several times in the night
In context ↗ - Brain fog
I definitely felt similar to you (brain fog, robotism, depersonalization)
In context ↗ - Gut problems
I had to go on a super strict diet for gastritis, and that surprisingly helped a decent amount too
In context ↗
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