Mostly bedbound with long COVID, much better on a low-histamine diet and antihistamines
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
in October 2023 I got covid and after that I was basically bedbound and slowly getting worse over time until August of this year
In context ↗ - At worst: Severe
I couldn't bathe myself regularly, I only left the house to go to medical appointments. On bad days, all I could do was lay in the dark
In context ↗ - Now: Much better
I've gone for walks, done a tone of household chores, cooked dinner almost every night, read books that require concentration, and gone out on brief errands ... none of which triggered any adverse reaction
In context ↗ - Began after: COVID
covid was my hard freeze
Read from 10 of their posts and comments; links to the 6 this page draws on
Summary
After a COVID infection in October 2023, Glacier 23093 was mostly bedbound with brain fog, weeks-long migraines, light sensitivity and crashes, and got slowly worse over three years. In August 2026 a low-histamine diet plus daily antihistamines (cetirizine, famotidine, hydroxyzine as needed) ended their brain fog and migraines within about two weeks, letting them walk, cook and read again. A medication tried later made them worse.
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What they tried
What they credit
Also tried
Their words about each treatment
- migraine medications · No change
None of them worked, and many had awful side effects.
In context ↗ - testosterone · No change
starting testosterone did not improve my symptoms for more than a few weeks in any way I could tell
In context ↗ - hydroxyzine · Helped
My migraine fully paused for six hours. Hydroxyzine is a powerful antihistamine.
In context ↗ - low histamine diet · Helped a lot
A low histamine diet has done wonders for me though.
In context ↗ - citirizine · Helped
added different anti-histamines to my daily medications
In context ↗ - pepcid ac · Helped
pepcid ac and citirizine daily with hydoxyzine as needed
In context ↗ - cromolyn sodium · Worse
My pcp prescribed this for me and unfortunately it made me worse
In context ↗ - physical therapy · Not said
I am physically very de-conditioned and working with a PT on that
In context ↗ - fragrance free products · Helped
I was already fragrance free and that makes a difference too
In context ↗
Approaches: H1 antihistamines · H2 blockers · Diet
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| October 2023 | COVID infection turns years of headaches and fatigue into a debilitating illnessA covid infection in October of 2023 turned all of this into a debilitating nightmare.In context ↗ | |
| until August 2026 | bedbound and slowly worsening for almost three yearsin October 2023 I got covid and after that I was basically bedbound and slowly getting worse over time until August of this yearIn context ↗ | |
| August 2026 | low-histamine diet and daily antihistamines clear brain fog and migraines within about two weeksI felt better within a couple weeks of starting on a couple new anti-histamines and a low-histamine diet.In context ↗ | Low-histamine diet |
| October 2026 | walking, chores and cooking without crashes, but physically deconditionedI've gotten a ton of relief from an antihistamine regimen and a low-histamine dietIn context ↗ |
Adverse events
- “None of them worked, and many had awful side effects.” In context ↗ Side effects
- Cromolyn (Gastrocrom, Nalcrom)“My pcp prescribed this for me and unfortunately it made me worse” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
Brain fog and fatigue so bad I had to give up pretty much every creative and outdoor activity
In context ↗ - Headaches & migraine
Migraines that would last for weeks on end
In context ↗ - Post-exertional malaise
I would almost always have a crash afterwards
In context ↗ - Light & noise sensitivity
headaches with light and sound sensitivity
In context ↗ - Mast cell (MCAS) & allergies
I actually have (suspected) MCAS.
In context ↗
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