Severe insomnia with long COVID, much better with mindset work and Primal Trust
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 5 years
- Last post
- Jan 2025
In their words
- Condition: Long COVID
Somehow LC dysregualted my nervous system
In context ↗ - At worst: Severe
but it's not enough for me, I'm pretty severe
In context ↗ - Now: Much better
Good news is, I have gotten a lot better.. but it's a whole list of things that have helped.
In context ↗ - Began after: COVID
I got sick at the top January 2020, and it very well might've been covid..
In context ↗
Read from 10 of their posts and comments; links to the 8 this page draws on
Summary
Falling ill in January 2020, possibly with COVID, they had severe insomnia, body anxiety, trembling, palpitations and histamine intolerance, going days without sleep. Iron raised ferritin and improved sleep until an adrenaline flare brought 17 sleepless nights. By 2025 they were much better, crediting mindset work and Primal Trust, Synapsin LPT for shaking, Seroquel and mirtazapine for sleep, and neural therapy; histamine reactions remained.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- DAO · Helped
The one that has helped me most is seriphos, DAO, and phosphatidylserine
In context ↗ - high dose melatonin · Helped
high dose melatonin
In context ↗ - low histamine, low oxalate, no gluten diet · Helped
Helped for a bit, then just continued to grow even worse
In context ↗ - low histamine, low oxalate diet · Helped
Been on a low histamine, low oxalate diet for a year
In context ↗ - VSL · Worse
I took VSL for 2 days and went into a pretty bad histamine flare
In context ↗ - Mega IgG2000 · Helped
Something that's helped my flares a ton, is Mega IgG2000
In context ↗ - carnivore · Not said
Tried carnivore multiple times
In context ↗ - parasite killing · Not said
Done parasite killing, gut protocols
In context ↗ - low histamine probiotics · Not said
Tried low histamine probiotics
In context ↗ - Zyrtec/claritin · Helped
Zyrtec/claritin will help me with night itching
In context ↗ - vagus nerve tens unit · Helped
I've used the vegas nerve tens unit, and that does definitely help me a bit
In context ↗ - epsom salt bath · Helped
Another thing that helps sometimes, is epsom salt bath
In context ↗ - castor oil · Helped
then putting castor oil, and red light on my stomach
In context ↗ - three arrows iron · Helped
I was able to get my ferritin up from 22, to 57 in 2 months, on three arrows iron
In context ↗ - Synapsin LPT · Helped a lot
The synapsin LPT helped me the most with my bodies nonstop trembling.
In context ↗ - Lexapro · Worse
Lexapro definitely helped with a level of the anxiety, but ended up giving me worse sleep
In context ↗ - Buspirone · Helped
Buspirone helped the most with trembling / shaking for myself
In context ↗ - Seroquel · Helped
Seroquel I took for about 5 months, then weened of it, honestly had no bad side affects from it
In context ↗ - Mirtazapine · Worse
Mirtzapine, helped a lot with sleep, but made me so fatigued during the day I literally couldn't move
In context ↗ - Primal Trust course · Helped a lot
I did a nervous system course, called primal trust
In context ↗ - Unlearn your pain by Howard Schubiner · Helped
The best book I read for it, is by Unlearn your pain by Howard Schubiner
In context ↗ - This is Natto book · Helped
There's a book by Daniel Erichson, called "This is Natto" that teaches you a new way to respond to insomnia
In context ↗ - neural therapy · Helped a lot
it helped me a ton with face, jaw tension
In context ↗
Approaches: CBT & mindset · Antihistamines & MCAS · Brain retraining · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4.1 years after onset: the story doesn’t say how ill they were before that. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2020 | fell ill, possibly with COVIDI got sick at the top January 2020, and it very well might've been covid..In context ↗ | Not stated | |
| Summer 2020 | insomnia grew worseThat Summer is when I started to struggle more and more with insomniaIn context ↗ | Not stated | |
| 2020 | sleep better after eating lots of iron-rich spinachthings got better when I started eating tons of spinachIn context ↗ | Not stated | Iron infusion / ferritin repletion |
| early 2024 | ferritin rose from 22 to 57 and sleep improvedI was able to get my ferritin up from 22, to 57 in 2 months, on three arrows iron ... I was sleeping so much better the first monthIn context ↗ | Mild | Iron infusion / ferritin repletion |
| April 2024 | adrenaline stress flare with 17 sleepless nightsNow It's been 17 days of not sleeping the entire night.In context ↗ | Severe | |
| January 2025 | a lot better overall, histamine reactions remainI have gotten a lot better.. but it's a whole list of things that have helped.In context ↗ | Mild | Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust) |
Adverse events
- Probiotics and fermented foods“I took VSL for 2 days and went into a pretty bad histamine flare as well ... I became severely itchy, which caused 2 nights of insomnia” In context ↗ Autoimmune or inflammatory flare
- “when I started eating tons of spinach ... (until it caused kidney stones lol)” In context ↗ Liver or kidney problems
- Escitalopram (Lexapro)“Lexapro definitely helped with a level of the anxiety, but ended up giving me worse sleep ... I'd experience worse adrenaline at night” In context ↗ Insomnia from treatment
- Mirtazapine (Remeron)“Mirtzapine, helped a lot with sleep, but made me so fatigued during the day I literally couldn't move” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
zero sleep for days on end, for months
In context ↗ - Mast cell (MCAS) & allergies
My histamine reactions did not leave
In context ↗ - Anxiety & low mood
3 days of no sleep usually leads to a breakdown of some sort. Just crying and wanting to die
In context ↗ - Heart symptoms & palpitations
salt makes heart palps way worse for me
In context ↗ - Brain fog
inability to concentrate
In context ↗
Ask Miruvor AI
Similar stories
-
Long COVID too faint to walk or drive, now good most days at about 80-85%
A woman who fell ill with long COVID in August 2023 was too faint to walk around much or drive, with brain fog, breathlessness and anxiety. Quitting her job and resting six months, plus supplements, brought her to about 90% by mid-2024, but a January 2025…
-
Housebound and mostly bedbound with ME/CFS, a little better with pacing and rest
Tide 52539 fell ill at 15 in 2012 after severe mono and stayed mild for a decade before declining to moderate; therapy that pushed them through symptoms during long COVID left them severe. By 2026 they were housebound and mostly bedbound. Radical rest,…
-
Bedbound for months with ME/CFS, now somewhat better with pacing and guanfacine
Kite 77342 got EBV in June 2025 and later spent months bedbound in a dark room with severe brain fog, light and sound sensitivity and around 700 steps a day at worst. Pacing, nervous-system work and guanfacine from February 2026 brought slow, uneven…
-
Bedbound with long COVID, now recovered after olanzapine and brain retraining
An Australian woman caught COVID in May 2023 and deteriorated over six months until she was bedbound, in rolling PEM, and hospitalised for three weeks. She credits olanzapine, zinc and brain retraining (Primal Trust, then the Lightning Process) for a full…