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ME/CFS Outcome unclear

ME/CFS with inflammation, body pain, food reactions, limited walking; tried AIP/paleo

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Aug 2023
In their words
  • At worst: ModerateI can walk short walks, a few hundred meters on my good days. With the wheelchair I can go further. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A person with ME/CFS who had COVID the previous winter reported inflammation, body pain and reactions to high-histamine foods. Eating AIP or paleo reduced the inflammation and pain and calmed their heart rate, though cheating on it brought the pain back. They could walk only a few hundred metres on good days and used a wheelchair to go further, pacing carefully. Illness duration was not stated.

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What they tried

Their words about each treatment
  • aip or paleo · HelpedWhen I’m eating aip or paleo I get less inflammation and pain in my body and a calmer heart rate. In context ↗
  • food with low histamine · HelpedSince I had covid last winter I also get some symptoms from food with high histamine. So I try to eat food with low histamine in it. In context ↗
  • pace myself · Not saidSo I make sure to pace myself well when using it. In context ↗
  • wheelchair · HelpedYes. It has helped me. I can walk short walks, a few hundred meters on my good days. With the wheelchair I can go further. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they wereAfter
winter 2022-2023had COVID, afterwards new symptoms from high-histamine foodsSince I had covid last winter I also get some symptoms from food with high histamine. In context ↗Not stated
2023-08-15AIP/paleo diet gave less inflammation, pain and a calmer heart rateWhen I’m eating aip or paleo I get less inflammation and pain in my body and a calmer heart rate. In context ↗ModerateElimination diets (other)
2023-08-16using a wheelchair to go further; walks a few hundred metres on good days with careful pacingYes. It has helped me. I can walk short walks, a few hundred meters on my good days. In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaBut the pain always get worse after a while. In context ↗
  • Mast cell (MCAS) & allergiesI also get some symptoms from food with high histamine. In context ↗
  • Heart symptoms & palpitationsa calmer heart rate In context ↗

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