ME/CFS
Severe → no benefitNeeds ongoing treatment
ME/CFS seizures from social contact; visitor limits and postcards brought no improvement
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Apr 2024
In their words
- Condition: ME/CFS
i have seizures almost vry time i have a social interaction bc communication is 2 cmplx 4 my brain 2 handle
In context ↗ - At worst: Severe
i severely limit social interactions
In context ↗ - Now: No benefit
communication is 2 cmplx 4 my brain 2 handle
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Living alone with ME/CFS, this person had seizures almost every time they had a social interaction, because communication was too complex for their brain to handle, and severely limited social contact. Limiting visitors to the people they felt most comfortable with helped a lot, as did choosing those who drained their energy least. They asked people to send postcards and small gifts, and touching objects chosen for them brought comfort.
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What they tried
Their words about each treatment
- limiting visitors / severely limiting social interactions · Helped
limiting visitors 2 the ppl i m most comfortable w helps a ton ... i severely limit social interactions
In context ↗
Symptoms mentioned
Their words about their symptoms
- Brain fog
communication is 2 cmplx 4 my brain 2 handle
In context ↗