Long COVID with heart-rate swings and 50 symptoms, now much better with time
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 6 months
- Last post
- Jul 2024
In their words
- Condition: Long COVID
then developed LC like symptoms in Sept 23 till now I’m suffering
In context ↗ - At worst: Moderate
50 over symptoms fearing for my life daily
In context ↗ - Now: Much better
I think I’m at least 50% better I could go out to nearby shops to buy my own food and go to work
In context ↗ - Began after: COVID
I recovered fully after my infection on July 22 was asymptomatic for 14 months then developed LC like symptoms in Sept 23
Read from 12 of their posts and comments; links to the 9 this page draws on
Summary
Breeze 51289 had COVID in July 2022, recovered fully, then developed long COVID in September 2023 with heart-rate swings, panic and around 50 symptoms arriving week by week. Ivabradine and then bisoprolol from October 2023 controlled the heart rate. They improved markedly in March 2024, crediting time over the supplements and diets tried, and by July 2024 felt at least 50% better, able to shop and work but not play sport as before.
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What they tried
What they credit
Also tried
Their words about each treatment
- ivabradine · Helped
You want to try ivabradine I’m been taking it and it is controlling my heart rate pretty well so far
In context ↗ - bisoprolol · Helped
I got better after being out on ivabradine then bisoprolol ... now taking bisoprolol fumarate 2.5mg/day daily since last October
- Earthing / grounding · Helped
Tried it for the past two days felt better but doesn’t last I guess will keep trying..
In context ↗ - rest and relaxation · Not said
time, rest, relaxation, distraction perhaps
In context ↗ - Natto · Not said
Natto, rest, relaxation, distraction, avoid caffeine, avoid fatigue, exhaustion more sleep..
In context ↗ - avoiding caffeine · Not said
avoid caffeine, avoid fatigue, exhaustion more sleep..
In context ↗ - Omega-3 · Not said
Omega-3, multivitamin, blueberries, ginseng, niacin, bisoprolol, grounding sheet, sunlight, red-light, ivabradine
In context ↗ - massage · Not said
watching comedy, massage, laughing, singing, hugs??
In context ↗ - melatonin · Not said
natto, melatonin, multivitamins, grounding mats, diets and others
In context ↗ - time · Helped
Time really, the others is just a guess
In context ↗
Approaches: POTS medication · Beta-blockers
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| July 2022 | COVID infection, recovered fully, 14 months asymptomaticI recovered fully after my infection on July 22 was asymptomatic for 14 monthsIn context ↗ | Not stated | |
| September 2023 | long COVID symptoms began and worsened week by weekthen developed LC like symptoms in Sept 23 till now I’m sufferingIn context ↗ | Moderate | |
| 2024-03 | improved markedly, about 50% of normal self with a couple of symptoms leftI have improved miraculously in March ... I’m only like 50% of what I am still have couple of symptomsIn context ↗ | Mild | Time and spontaneous remission |
| 2024-07-16 | at least 50% better; can shop and work, not sportI think I’m at least 50% better I could go out to nearby shops to buy my own food and go to work but not have the confidence to wander far or play sports intensely like I used to.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
I still have this symptom once in a while now taking bisoprolol fumarate 2.5mg/day daily since last October
In context ↗ - POTS & dysautonomia
it was 120 -> 80 up and down like crazy any slight movement it goes up
In context ↗ - Anxiety & low mood
then went into panic
In context ↗
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