ME/CFS
Outcome unclear
Extreme ME/CFS symptoms and exhaustion, later lack of taste
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jan 2022
In their words
- At worst: Moderate
I’ve also let all my relationships deteriorate becuase I can’t hang out with people I don’t have money I don’t respond to texts because I’m asleep so much.
In context ↗
Summary
In r/cfs in December 2021 the user described extreme symptoms, a cluttered home, lost relationships and sleeping so much they could not reply to texts. Forcing themselves to mop and clear trash left them shaking, inflamed, exhausted and dizzy, taking ibuprofen every four hours. A flu shot sent them to the emergency room, and by 19 January 2022 they reported lack of taste and breathing almost back to normal.
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What they tried
Also tried
Their words about each treatment
- ibuprofen · Not said
I’m in bed taking ibuprofen every 4 hours shaking and inflamed
In context ↗ - vitamins · No change
I’m taking vitamins constantly but not really feeling any effect !
In context ↗ - Flu vaccine · Worse
I took my flu shot this year and ended up in the emergency room so ....
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2021-09-11 | flu shot led to an emergency room visitI took my flu shot this year and ended up in the emergency room so ....In context ↗ | Not stated |
| 2021-12-30 | crashed after forcing themselves to mop and clear clutterI’ve forced myself to mop and cook and throw out tons of old trash and clutter and now I’m in bed taking ibuprofen every 4 hours shaking and inflamed and exhausted and dizzy.In context ↗ | Severe |
| 2022-01-19 | recovering from COVID-19, back near baselineBesides lack of taste I survived ! Breathing bleh almost back to normalIn context ↗ | Moderate |
Adverse events
- Flu vaccine“I took my flu shot this year and ended up in the emergency room so ....” In context ↗ ER visit
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I’ve forced myself to mop and cook ... now I’m in bed taking ibuprofen every 4 hours shaking and inflamed and exhausted and dizzy
In context ↗ - Sleep problems
I don’t respond to texts because I’m asleep so much.
In context ↗ - POTS & dysautonomia
shaking and inflamed and exhausted and dizzy
In context ↗ - Loss of smell or taste
Besides lack of taste I survived !
In context ↗ - Breathlessness
Breathing bleh almost back to normal
In context ↗