Housebound with ME/CFS for a couple of years, now somewhat better
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Apr 2026
In their words
- Condition: ME/CFS
I haven't worked since becoming ill with cfs back in 2021
In context ↗ - At worst: Moderate
I was housebound for a couple years and have worked up to being able to walk and do more again
In context ↗ - Now: Somewhat better
I was housebound for a couple years and have worked up to being able to walk and do more again
In context ↗
Summary
They became ill with CFS in 2021 and were housebound for a couple of years before working up to being able to walk and do more. Two short trial shifts at a cafe in September 2024 brought on bad PEM that left them in bed with nausea and pain, and they doubted they could take the job while starting a masters year. They were still using yoga nidra tracks in 2026.
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What they tried
Also tried
Their words about each treatment
- yoga nidra · Not said
I quite like Ayla Nova's yoga nidra tracks, she has a few specifically tailored for sleep with slow body rotation.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 3 years after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 2 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2021 | became ill with CFSI haven't worked since becoming ill with cfs back in 2021In context ↗ | Not stated |
| 2021-2023 | housebound for a couple of yearsI was housebound for a couple yearsIn context ↗ | Moderate |
| 2024 | worked up to walking and doing more, starting masters yearhave worked up to being able to walk and do more againIn context ↗ | Mild |
| 2024-09-11 | crashed after cafe trial shiftsam suffering from PEM quite badly, haven't been able to leave bedIn context ↗ | Moderate |
| 2026-04-08 | still using yoga nidra tracksI quite like Ayla Nova's yoga nidra tracksIn context ↗ | Not stated |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
am suffering from PEM quite badly, haven't been able to leave bed
In context ↗ - Pain & fibromyalgia
have been nauseous and in pain
In context ↗ - Anxiety & low mood
would help with my depression
In context ↗