ME/CFS
Moderate → somewhat better
ME/CFS lethargy and slow getting up, somewhat better after trusting body signals
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- May 2026
In their words
- Condition: ME/CFS
reactive oxygen species akin to CFS ME
In context ↗ - At worst: Moderate
when I get out of bed, I feel like I’m so lethargic and slow-moving
In context ↗ - Now: Somewhat better
My body is doing better.
In context ↗
Read from 8 of their posts and comments; links to the 6 this page draws on
Summary
Someone with ME/CFS describes being so lethargic and slow-moving when getting up that they feel no one that bad off should do anything, and needing to raise their blood pressure and keep cool in heat. They say dropping their impatience with their own body and trusting its signals helped: "My body is doing better". They still lean on cooling equipment and a dehumidifier for relief.
Ask Miruvor AI
What they tried
Also tried
getting up out of bed despite lethargy· Helpedbreaking the pattern of impatience/cruelty with my own body (interoception)· Helpedprescription antiperspirant· Helpeddehumidifier· Helpedswamp cooler (fan over frozen ice)· Not said
Their words about each treatment
- getting up out of bed despite lethargy · Helped
Lately I’ve said to myself “whether you look pathetic, just get up and look pathetic “. So I do, very slowly, looking quite pathetic, but somethings are better. In particular, the pain of inactivity and better blood pressure.
In context ↗ - breaking the pattern of impatience/cruelty with my own body (interoception) · Helped
I’m breaking this pattern every way, every day. ... So far so good. My body is doing better.
In context ↗ - prescription antiperspirant · Helped
Prescription antiperspirant is so much more effective than what you can get over the counter.
In context ↗ - swamp cooler (fan over frozen ice) · Not said
I set up a “swamp cooler “ : a fan blowing over something frozen like ice in a ziplock bag. It doesn’t work well in an already very humid environment.
In context ↗ - dehumidifier · Helped
Sometimes humidity alone is the problem and a dehumidifier on its own can make you feel a lot better instantly.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | fell illSince I’ve gotten sick I’m much more sensitive to downer moodsIn context ↗ | Not stated |
| 2026-04-05 | lethargic and slow-moving on getting out of bedwhen I get out of bed, I feel like I’m so lethargic and slow-moving, I say to myself, no one this bad off should get up and do things.In context ↗ | Moderate |
| 2026-04-28 | body doing better after listening to its signalsMy body is doing better.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
In particular, the pain of inactivity and better blood pressure.
In context ↗ - POTS & dysautonomia
when I’m trying to get my blood pressure up
In context ↗ - Temperature regulation
Once when I needed heat relief I went to my nearby library to study and chill out.
In context ↗ - Anxiety & low mood
Since I’ve gotten sick I’m much more sensitive to downer moods
In context ↗