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ME/CFS Mild → no benefitIll for 6 months

Constant back and neck pain with fatigue in ME/CFS, no improvement from pain meds

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
6 months
Last post
Apr 2026
In their words
  • Condition: ME/CFSDoes this sound like CFS/ or ms at this point? In context ↗
  • At worst: MildI started working out again 2 weeks ago In context ↗
  • Now: No benefitmy pain has got a lot worse not In context ↗
  • Began after: nothing they could namesince November I started to develop middle/upper back pain with pain in the back of my neck In context ↗
Read from 2 of their posts and comments; links to the one this page draws on

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Summary

A 25-year-old man developed constant middle and upper back and neck pain with fatigue in November, about five months before writing. Physiotherapy twice, multiple blood tests and neck and whole-body MRI scans were all clear, and medications tried for the pain did nothing. After he restarted working out in March the pain got much worse, and he was unsure what else to try.

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What they tried

Also tried

PT· No changesome different medication· No changeworking out again· Worse
Their words about each treatment
  • PT · No changeDid PT- did nothing ... Did PT again didn’t really do anything In context ↗
  • some different medication · No changetried some different medication nothing worked In context ↗
  • working out again · WorseI started working out again 2 weeks ago and my pain has got a lot worse not In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
November 2025upper back and neck pain with fatigue begansince November I started to develop middle/upper back pain with pain in the back of my neck In context ↗Mild
March 2026pain much worse after restarting workoutsI started working out again 2 weeks ago and my pain has got a lot worse In context ↗Mild
2026-04-02still in constant pain, unsure what to do nextThe back and neck pain is pretty much constant , definitely hurts the just while sitting and laying down. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiamiddle/upper back pain with pain in the back of my neck In context ↗

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Asking aboutCanyon 92621’s story

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