ME/CFS
Mild → no benefit
Constant tiredness and mental drain with suspected ME/CFS, no benefit from tried remedies
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Jul 2019
In their words
- Condition: ME/CFS
I haven't been "Diagnosed" yet, but feel like I have CFS
In context ↗ - At worst: Mild
it's just difficut to want to socialize, talk, do homework/schoolwork/work and paying attention and remembering things with being just tired all the time
In context ↗ - Now: No benefit
I'm always tired besides in certain bursts
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Island 50266 wrote in 2019 that they had not been diagnosed with CFS but suspected it after blood tests came back normal. They described being tired all the time, mentally drained, and finding it difficult to socialize, talk, study or work and to pay attention or remember things. A specific folate helped briefly, and caffeine or kratom kept them productive.
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What they tried
Their words about each treatment
- specific folate · Helped
I have the MTHFR heterozygous gene, so I take a specific folate which helped for a short period of time
In context ↗ - Kratom · Helped
It's the only things that keep me productive and doing things.
In context ↗ - caffeine · Helped
I'm always tired besides in certain bursts like if I have some caffeine (which doesn't do too much) or kratom
In context ↗ - adderall · Worse
DR prescribed adderall at one point, but I didn't like it
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | suspected CFS while undiagnosedI haven't been "Diagnosed" yet, but feel like I have CFS.. how to be sure?In context ↗ | Mild |
| 2019-07-31 | still tired all the time, no diagnosisI'm always tired besides in certain bursts like if I have some caffeine (which doesn't do too much) or kratom.In context ↗ | Mild |
Adverse events
- Kratom“after a few hours after taking that, I feel just mentally drained and tired” In context ↗ Other
Symptoms mentioned
Their words about their symptoms
- Brain fog
paying attention and remembering things
In context ↗