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Long COVID Severe → much betterIll 14 months before improving or writingNeeds ongoing treatment

Long COVID left her in bed for four weeks; now much better with time and activity

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
14 months
Last post
Sep 2022
In their words
  • Condition: Long COVIDGot my vaccine (1st dose Pfizer) end of Sep 2021 after 2 months of long haul. In context ↗
  • At worst: SevereHaven't been able to get out of bed for 4 weeks. In context ↗
  • Now: Much betterThe tachycardia is still super apparent and limits my abilities but I've already cut 1 minute off my mile time! In context ↗
  • Began after: COVIDI got covid 6 weeks ago In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on

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Summary

A previously active 18-year-old student caught COVID in July 2021 and spent four weeks in bed with chest pain, dizziness and breathlessness. A Pfizer dose in September 2021 left her significantly worse, heart rate spiking to 170 on walking, and a plateau lasted to May 2022. From July 2022 she hiked daily and ran again, crediting time and consistent activity; PEM resolved, though tachycardia still limited her at 14 months.

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What they tried

Their words about each treatment
  • consistent activity · HelpedI've been doing some heavy hiking basically everyday since July and got back to running this week. In context ↗
  • time · HelpedI think the only thing that helped was time and consistent activity. In context ↗
  • Pfizer vaccine (1st dose) · Much worseGot my vaccine (1st dose Pfizer) end of Sep 2021 after 2 months of long haul. I am significantly worse now. In context ↗
  • water with electrolytes · HelpedI have to eat and drink a lot of water with electrolytes and that helps me the most. In context ↗

Approaches: Exercise and activity

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
July 2021COVID infectionI got covid 6 weeks ago In context ↗
August 2021bedridden for four weeksHaven't been able to get out of bed for 4 weeks In context ↗
August 2021started feeling better and tried exercising againI've started feeling better the past 3-4 days In context ↗
end of Sep 2021crashed after first Pfizer doseI am significantly worse now. I cannot walk without my heart rate jumping to 170. In context ↗
December 2021 - May 2022worsening symptoms then a plateauAfter worsening symptoms and plateau-ing between December-May In context ↗
2022-09-16PEM resolved; hiking daily and back to running, tachycardia remainsThe tachycardia is still super apparent and limits my abilities but I've already cut 1 minute off my mile time! In context ↗Time and spontaneous remission

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseany intense activity would leave me fatigued for 2-3 days In context ↗
  • POTS & dysautonomiadiagnosed with sinus tachycardia and orthostatic hypotension In context ↗
  • Heart symptoms & palpitationsThe tachycardia is still super apparent and limits my abilities In context ↗
  • BreathlessnessMy main symptoms were SOB, chest pain, dizziness/lightheadedness, fatigue, nausea, headaches, anxiety, low BP, and fast HR. In context ↗

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