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ME/CFS Moderate → no benefitIll for 1 year

Severe fatigue and back and leg pain for almost a year with ME/CFS, supplements no help

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
1 year
Last post
Jan 2026
In their words
  • Condition: ME/CFSSevere fatigue and pain ... for almost one year I am suffering from severe fatigue In context ↗
  • At worst: Moderatesome days the fatigue is so bad that even getting a glass of water for myself feels like a big job In context ↗
  • Now: No benefitI am taking supplements but no improvement. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A 39-year-old woman had had severe fatigue and unbearable back and leg pain for almost a year, with bad days when even getting a glass of water felt like a big job. Blood tests showed low ferritin and vitamin D3, but supplements gave no improvement. She was seeing several doctors who did not seem to understand what she was going through and said she was depressed and desperate for a normal life.

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What they tried

Also tried

supplements· No change
Their words about each treatment
  • supplements · No changeI am taking supplements but no improvement. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo9 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
about one year before January 2026severe fatigue and pain began, cause not identifiedfor almost one year I am suffering from severe fatigue In context ↗Moderate
2026-01-15still severely fatigued and in pain, no improvement from supplementssome days the fatigue is so bad that even getting a glass of water for myself feels like a big job In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaMy pains especially my back and legs have been unbearable In context ↗
  • Anxiety & low moodI am getting quite depressed and desperate to have a normal life. In context ↗

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