Long COVID practically bedridden for months, somewhat better after two and a half years
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Sep 2023
In their words
- Condition: Long COVID
for the first few months of long Covid I was practically bedridden
In context ↗ - At worst: Severe
for the first few months of long Covid I was practically bedridden with hr shooting up to 140/150 just from standing up.
In context ↗ - Now: Somewhat better
While I have other persistent issues that I have not had any improvement from, this calf issue has definitely improved.
In context ↗ - Began after: COVID
I'm still dealing with issues from Covid 9 months later
In context ↗
Read from 25 of their posts and comments; links to the 15 this page draws on
Summary
A long-COVID patient was practically bedridden for the first months with tachycardia reaching 140-150 on standing, and later limited by Charlie horse-type calf pain. Tachycardia eased over months, and they were unsure whether intermittent fasting helped, but it returned full force around 15 months in. After two and a half years the calf pain was much better, though other symptoms and high ferritin remained an issue.
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What they tried
What they credit
Also tried
Their words about each treatment
- metoprolol · Worse
I was put on metoprolol but I felt even worse chest pain with that
In context ↗ - blood thinner · Worse
I was given a blood thinner. I took one dose and had issues with it and went to the er
In context ↗ - giving up coffee · Worse
When I tried to give up coffee I expected the headache from the withdrawal but I never expected the bodyaches that also came!
In context ↗ - intermittent fasting · Not said
I have also included intermittent fasting for the past 2 months, I wasn’t sure if it was really doing anything for me , but my tachycardia has definitely improved .
In context ↗ - Moderna · No change
it did not cause any new or worsening tachycardia
In context ↗ - Epsom salt bath · Helped
I have a good 30 minutes where I’m so relaxed where I don’t feel much pain
In context ↗ - B1 Thiamine · No change
I tried for awhile but gave up on it since it did not help with my calf pain
In context ↗ - liposomal vitamin c · Not said
I gave up my daily liposomal vitamin c supplement that I have been taking for 2 years
In context ↗ - epa fish oil supplement · Helped
The only thing besides time that I think may have helped me at least with the inflammation is omega 3 fish oil supplement.
In context ↗ - Qunol turmeric supplement · Helped
I thought was due to quitting vitamin c and adding turmeric and fish oil,but I tested it last week and it is high again
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| December 2020 | COVID-19 followed by long CovidI'm still dealing with issues from Covid 9 months laterIn context ↗ | Not stated | |
| early 2021 | practically bedridden with tachycardia and chest painfor the first few months of long Covid I was practically bedridden with hr shooting up to 140/150 just from standing upIn context ↗ | Severe | |
| July 2021 | able to get up and do light activity as tachycardia lessenedIt took a few months to get to the point where I can get up and move around and do light activityIn context ↗ | Moderate | Intermittent fasting |
| October 2021 | tachycardia about 90% better but new joint and muscle painI am in my 10th month now and I would say my tachycardia is about 90% betterIn context ↗ | Mild | |
| March 2022 | tachycardia returned full force after six months goneOne week ago, after being gone for 6 months my tachycardia has returned full forceIn context ↗ | Moderate | |
| July 2023 | calf pain much better, only occasional flare-upsIt’s 2 1/2 years later and I will still have an occasional flare up of calf pain but it is so much better than it wasIn context ↗ | Mild | Omega-3 and fish oil |
| September 2023 | calf pain improved but other symptoms and high ferritin persistwhile I have other persistent issues that I have not had any improvement from, this calf issue has definitely improvedIn context ↗ | Mild |
Adverse events
- Metoprolol (Lopressor, Toprol)“I was put on metoprolol but I felt even worse chest pain with that” In context ↗ Made symptoms worse
- Metoprolol (Lopressor, Toprol)“only took it for a week since it brought down my heart rate to the 30’s overnight while sleeping” In context ↗ Heart rhythm problems
- COVID vaccination as treatment“I have developed joint and muscle pain after the vaccine that I did not have prior to it” In context ↗ Other
- “I took one dose and had issues with it and went to the er” In context ↗ ER visit
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
I had extreme tachycardia for about the first 4 months, it would shoot up to as high as 140 upon standing
In context ↗ - Pain & fibromyalgia
I will still have an occasional flare up of calf pain but it is so much better than it was
In context ↗
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