ME/CFS
Outcome unclear
Severe ME/CFS crash with body pain and little sleep; some comfort from TENS and pillow
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
I personally haven’t been diagnosed yet, however I treat myself with the same pacing and carefulness with my body as if I were.
In context ↗ - At worst: Severe
I was just rolling around in pain in bed, then moving to the couch and rolling around there.
In context ↗
Summary
An undiagnosed user who paced themself as if they had ME/CFS described a severe crash in which their whole body hurt and they barely slept for days, leaving them rolling around in bed and on the couch. They bought a pregnancy pillow and a TENS unit, which they said gave a little comfort and noticeable chronic pain relief within a few uses. A vagus nerve stimulator they had used eased their anxiety and sleep but not their POTS symptoms.
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What they tried
Also tried
Their words about each treatment
- VNS · Helped
When I was using my VNS, I did notice it helped with my anxiety and sleep, which were major struggles of mine at the time. Unfortunately, it didn’t improve any of my POTS symptoms
In context ↗ - pacing · Not said
I treat myself with the same pacing and carefulness with my body as if I were.
In context ↗ - Tens Unit · Helped
I’ve been using the Tens unit for chronic pain. ... So far it’s provided noticeable pain relief in just a few uses!
- Pregnancy pillow · Helped
I just recently bought myself both of these things after a pretty severe crash. ... This isn’t a cure-all, but it’s given me a little bit of relief.
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | undiagnosed illness, self-managed with pacingI personally haven’t been diagnosed yet, however I treat myself with the same pacing and carefulness with my body as if I were.In context ↗ |
| 2026-07 | severe crash with whole-body pain and almost no sleep, in bed and on the couchafter a pretty severe crash. My whole body hurt so badly, and because of that my sleep was basically nonexistent for a few days.In context ↗ |
| 2026-07-22 | bought a pregnancy pillow and a TENS unit, became mildly comfortableBoth things showed up in the mail, (Links attached) and I was actually mildly comfortable.In context ↗ |
| 2026-07-23 | noticeable pain relief from the TENS unit after a few usesSo far it’s provided noticeable pain relief in just a few uses!In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
My whole body hurt so badly
In context ↗ - Sleep problems
my sleep was basically nonexistent for a few days
In context ↗ - Anxiety & low mood
it helped with my anxiety and sleep, which were major struggles of mine at the time
In context ↗ - POTS & dysautonomia
it didn’t improve any of my POTS symptoms
In context ↗