ME/CFS
Outcome unclear
ME/CFS with air hunger and fatigue, now unclear; SAM-e helped mood only
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jun 2020
In their words
- Condition: ME/CFS
I noticed no improvement in other CFS symptoms while taking it.
In context ↗
Summary
The person reported CFS symptoms including air hunger, fatigue and a poor autonomic system. They took SAM-e for depression for a couple of years; it helped mood but not other CFS symptoms, and its benefit faded. Sleeping on an incline slightly eased the air hunger, which they linked to night-time acid reflux, and they later switched to methylfolate.
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What they tried
Their words about each treatment
- SAM-e · Helped
This supplement worked great for my depression, but it was expensive to do it right, and it worked less and less as time went on.
In context ↗ - methylfolate · Not said
I've since switched over to methylfolate (another part of the methylation cycle) which is cheaper and has different side effects and interactions.
In context ↗ - sleeping on an incline · Helped
my air hunger subsided a little when I started sleeping on an incline
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | CFS symptoms presentI noticed no improvement in other CFS symptoms while taking it.In context ↗ |
| 2020-06-23 | air hunger subsided a little after sleeping on an incline; still reports fatigue and autonomic issuesmy air hunger subsided a little when I started sleeping on an inclineIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Breathlessness
my air hunger subsided a little when I started sleeping on an incline
In context ↗ - POTS & dysautonomia
my autonomic system is not great
In context ↗ - Anxiety & low mood
I used SAM-e for a couple of years to treat depression
In context ↗ - Gut problems
I was aspirating small amounts of stomach acid in my sleep.
In context ↗