Long COVID
Severe → somewhat better
Bedbound with long COVID, now slightly less bedbound after slow light and sound exposure
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2026
In their words
- At worst: Severe
Yes I'm slightly less bed bound now
In context ↗ - Now: Somewhat better
I've found very slow graded exposure has helped slightly. Started with just having the main light on for 30 seconds a day, increasing a tiny bit when I felt I could. Now I can tolerate 10 minutes.
In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
A Reddit user with long COVID was bed bound, with light and noise sensitivity, brain drain and infrequent symptoms. LDN brought on symptoms, while benzodiazepines helped their infrequent symptoms. By August 2026 they were slightly less bed bound, and in September very slow graded exposure to light and sound helped a little, letting them tolerate 10 minutes of light.
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What they tried
Also tried
Their words about each treatment
- LDN · Worse
I got those symptoms with LDN
In context ↗ - Benzos · Helped
Benzos help mine, but mine are infrequent so that's an okay sometimes treatment
In context ↗ - a few drinks · Helped
Same I find having a few drinks helps too.
In context ↗ - very slow graded exposure · Helped
I've found very slow graded exposure has helped slightly.
In context ↗ - Loop earplugs · Helped
I got the Loop earplugs for sound, they help a bit too
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | bed bound with long COVID, light and noise sensitivityYes I'm slightly less bed bound nowIn context ↗ | Severe |
| 2026-09-14 | slightly less bed bound; tolerating 10 minutes of light after very slow graded exposureI've found very slow graded exposure has helped slightly. ... Now I can tolerate 10 minutes.In context ↗ | Severe |
Adverse events
- Low-dose naltrexone“I got those symptoms with LDN” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Light & noise sensitivity
Now I can tolerate 10 minutes. Same with sounds, loud music for 30 seconds with gradual increase.
In context ↗ - Brain fog
it helps with brain drain
In context ↗