Long COVID for two years, slow progress before a cardio-triggered relapse; still ill
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Feb 2024
In their words
- Condition: Long COVID
I have managed to relapse with the first bit of light cardio in a class for a long Covid rehab program.
In context ↗ - At worst: Moderate
Back to square one , extreme PEM , fight or flight and as with every time I’ve relapsed mcas , inflamation and issues with food.
In context ↗ - Now: Relapsed
Had been making pretty good progress all be it baby steps but I have managed to relapse with the first bit of light cardio in a class for a long Covid rehab program.
In context ↗ - Began after: COVID
long Covid rehab program
Summary
Trail 70722 had long COVID for about two years and was making slow progress when light cardio in a long COVID rehab class triggered a relapse. They were back to square one with extreme PEM, fight-or-flight, MCAS, inflammation and food issues, and felt they had lost everything. By the latest post they were still ill with cognitive issues and anxiety; 1 to 4 g psilocybin calmed them while microdoses worsened anxiety.
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What they tried
Their words about each treatment
- light cardio in a class for a long Covid rehab program · Much worse
Relapsed at the 2 year mark ... Back to square one , extreme PEM , fight or flight
In context ↗ - Psilocybin · Helped
have noticed more calming effects between 1 and 4 grams
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 22 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022 | Long COVID beganstuck in the trip for 2 years on and offIn context ↗ | Not stated | |
| before February 2024 | gradual progressHad been making pretty good progress all be it baby stepsIn context ↗ | Mild | |
| 2024-02-16 | relapsed after light cardio in a long Covid rehab classI have managed to relapse with the first bit of light cardio in a class for a long Covid rehab programIn context ↗ | Moderate | Graded rehab and self-made programmes |
| 2024-02-19 | still ill with cognitive issues and anxiety; macro psilocybin calmed, microdoses worsened anxietyI’ve been stuck in the trip for 2 years on and offIn context ↗ | Moderate |
Adverse events
- Graded rehab and self-made programmes“I have managed to relapse with the first bit of light cardio in a class for a long Covid rehab program.” In context ↗ Made symptoms worse
- Graded rehab and self-made programmes“Honestly not feeling like I’ve got much chance of not topping myself is this is my future” In context ↗ Suicidal thoughts or attempt
- Psilocybin (magic mushrooms)“Where as the micro doses sometimes exhasperated the fight flight response / anxiety” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
mcas , inflamation and issues with food
In context ↗ - Brain fog
Strange cognitive issues
In context ↗ - Anxiety & low mood
fight flight response / anxiety
In context ↗