ME/CFS
No benefitIll for 10 years
CFS, bowel problems and seven months without sleep, still limited, no improvement
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 10 years
- Last post
- Feb 2025
In their words
- Condition: ME/CFS
I have had bowel problems for over ten years and CFS too.
In context ↗ - Now: No benefit
I still have CFS and struggle to do anything
In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on
Summary
A person with CFS and with bowel problems for over ten years described not sleeping for seven months and struggling to do anything. Gabapentin did not help pain or restless legs; iron liquid cleared the restless legs and Feroglobin seemed to improve thinking. They still had CFS and were limited by frequent bathroom trips at the time of writing.
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What they tried
Also tried
sleeping tablets· Helped a lotiron liquid· HelpedFeroglobin liquid· Helpedgabapentin· No changeelectrolyte fix drops· Not saidavoiding sugar· Not said
Their words about each treatment
- sleeping tablets · Helped a lot
Have you tried sleeping tablets? They helped me a lot but I didn't sleep for 7 months
In context ↗ - gabapentin · No change
I took gabapentin and came off it because it didn't help. ... I used to take Gabapentin for RLS but it didn't really help.
- iron liquid · Helped
I take iron liquid now because I heard that anaemia can cause RLS and I don't suffer from it anymore.
In context ↗ - Feroglobin liquid · Helped
I've noticed that since I began taking the Feroglobin it feels like a light came on in my brain.
In context ↗ - electrolyte fix drops · Not said
also "electrolyte fix" drops in my water
In context ↗ - avoiding sugar · Not said
I try hard to avoid sugar ... I'm not great with wheat, but sourdough seems ok.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| over ten years ago | CFS and bowel problems beganI have had bowel problems for over ten years and CFS too.In context ↗ | Not stated |
| 2025-02-26 | brain clearer after Feroglobin; still CFS and limited by bathroom tripssince I began taking the Feroglobin it feels like a light came on in my brain ... I still have CFS and struggle to do anythingIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Gut problems
I have had bowel problems for over ten years
In context ↗ - Sleep problems
I didn't sleep for 7 months
In context ↗ - Pain & fibromyalgia
It didn't help me with pain
In context ↗