ME/CFS
Severe → no benefit
Mild to moderate ME/CFS becoming severe, with no improvement
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Dec 2023
In their words
- Condition: ME/CFS
or if it somehow counterbalanced some part of the CFS/ME
In context ↗ - At worst: Severe
That was a few months ago and went to severe sicne
In context ↗ - Now: No benefit
That was a few months ago and went to severe sicne
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Canyon 10081 described being in a mild to moderate phase of ME/CFS before becoming severely ill a few months before December 2023. Cordyceps mushrooms quickly and noticeably eased their brain fog during the milder phase, but this did not prevent the worsening, and they planned to retry them. They also used tea and CBD, warned that too much CBD can cause panic attacks, and said chocolate had triggered panic attacks when they were going severe.
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What they tried
Also tried
Their words about each treatment
- Coffee · Worse
coffee si a nope (jittery, nervous, up to the point of anxiety and feeling atrocious)
In context ↗ - Tea · Helped
my answer has been Tea ; caffein in it is processed much more smoothly
In context ↗ - CBD · Helped
I find CBD foes well with caffein too, so I tend to have some when I drank too much tea
In context ↗ - Cordyceps mushrooms (Whole + Extract formula) · Helped
I did try some some mushrooms when I got into the mild/moderate phase of the illness ... noticeable effect on my brain fog
In context ↗ - Dark chocolate · Helped
dark chocolate is a very strong ally ... its helping me a lot
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | in the mild/moderate phase of the illnesswhen I got into the mild/moderate phase of the illnessIn context ↗ | Moderate | |
| — | brain fog eased quickly with cordyceps mushroomsnoticed a very quick and, er, noticeable effect on my brain fogIn context ↗ | Moderate | AHCC and medicinal mushrooms (reishi, shiitake, maitake) |
| a few months before December 2023 | worsened from mild/moderate to severeThat was a few months ago and went to severe sicneIn context ↗ | Severe | |
| December 2023 | still severe, about to retry cordyceps mushroomsam trying a new run with the same shrooms these very next days so we'll seeIn context ↗ | Severe |
Adverse events
- Caffeine and coffee“coffee si a nope (jittery, nervous, up to the point of anxiety and feeling atrocious)” In context ↗ Side effects
- CBD (cannabidiol)“too much of it can cause anxiety attack/panic attack ... just don't go for 30% extract thinking "more is better" as I did” In context ↗ Mood or psychiatric effects
- Dark chocolate and cocoa“it used to give me panic attacks when i was going severe - a single piece of chocolate and boom 40 mins later attack, every time” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
noticeable effect on my brain fog
In context ↗ - Anxiety & low mood
jittery, nervous, up to the point of anxiety and feeling atrocious
In context ↗