Moderate/severe ME/CFS, now much better after leaving mold and a year of rest
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Mar 2023
In their words
- Condition: ME/CFS
I used to be moderate/severe to the point of losing a job over it and am now very mild.
In context ↗ - At worst: Severe
I used to be moderate/severe to the point of losing a job over it
In context ↗ - Now: Much better
am now very mild. Only prolonged physical exertion will trigger a crash for me now.
In context ↗ - Began after: mould or toxic exposure
left a job in a moldy building
In context ↗
Summary
Ocean 70814 was moderate/severe with ME/CFS, ill enough to lose a job, and after about three years became very mild, with only prolonged physical exertion triggering a crash. They credit leaving a moldy building, a year of doing nothing, antihistamines, magnesium and vitamin D, naproxen for crashes and baby aspirin. Diphenhydramine helped sleep but was stopped for a next-day hangover.
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What they tried
What they credit
Also tried
Their words about each treatment
- left a job in a moldy building · Helped
left a job in a moldy building
In context ↗ - nothing for a year · Helped
nothing for a year
In context ↗ - diphenhydramine (antihistamines) · Helped
I took diphenhydramine before bed for a while and noticed an improvement as well. I had to quit because it was giving me a hangover though.
In context ↗ - magnesium and vitamin D supplement combo daily · Helped
magnesium and vitamin D supplement combo daily
In context ↗ - naproxen · Helped
naproxen to combat crashes
In context ↗ - baby aspirin · Helped
baby aspirin for milder inflammation
In context ↗ - salt in every glass of water · Helped
salt in every glass of water is what works for me
In context ↗ - electrolyte mix · Worse
I bought an electrolyte mix and it makes the frequent urination even worse.
In context ↗
Approaches: H1 antihistamines · Anticoagulants · Mould avoidance · Other drugs and medicines · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | moderate/severe ME/CFS, lost a job over itI used to be moderate/severe to the point of losing a job over itIn context ↗ | Severe | |
| 2023-03-06 | very mild about three years after leaving the moldy job; only prolonged exertion crashes themam now very mild. Only prolonged physical exertion will trigger a crash for me now. ... Time frame was 3 years after leaving the moldy job.In context ↗ | Mild | Mold avoidance / CIRS protocol |
Adverse events
- Diphenhydramine (Benadryl)“I had to quit because it was giving me a hangover though. Wasnt wearing off the next day.” In context ↗ Side effects
- “oddly I bought an electrolyte mix and it makes the frequent urination even worse” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Only prolonged physical exertion will trigger a crash for me now.
In context ↗ - Gut problems
I have your symptoms and salt in every glass of water is what works for me.
In context ↗
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