ME/CFS
Outcome unclear
ME/CFS: cold hands, pain and poor sleep; tried breathing exercises and gratitude
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Apr 2019
Summary
A person in Norway described ME/CFS in posts from 2018 to 2019, showering daily but unable to wash their hair for nearly two weeks without their mother's help. They had permanently cold hands and feet, pains and trouble sleeping, and used audiobooks, breathing exercises and a daily gratitude notebook to cope, plus antidepressants. No improvement was reported; peppermint and liquorice tea made them urinate a lot.
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What they tried
Also tried
sitting on a chair in the bathtub while my mom washes my hair· Helpednotebook of three things I'm grateful for each day· Helpeddeep breathing· Helpedantidepressants· Not said
Their words about each treatment
- sitting on a chair in the bathtub while my mom washes my hair · Helped
It's amazing, and takes much less energy than when I do the whole routine myself.
In context ↗ - antidepressants · Not said
Yay for antidepressants!
In context ↗ - notebook of three things I'm grateful for each day · Helped
For the past few years I've kept a notebook with three things I'm grateful for each day, and that has helped.
In context ↗ - deep breathing · Helped
A trick I like is to take 3 deep breaths, and consciously following the air as it enters and exits your body.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2018-12-02 | hair unwashed for nearly two weeks; their mother washed it for themIt's been almost two weeks since I last washed it, filled with dry shampoo and not looking in mirrors.In context ↗ | Severe |
| 2019-02-12 | still needs their mother's help to wash their hair, sitting on a chair in the bathtubI sit on a chair in the bathtub in my underwear while my mom washes my hairIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
I find that listening to a story and following along makes it easier to ignore the pains.
In context ↗ - Sleep problems
I tend to listen to them when I need rest but can't sleep.
In context ↗ - Temperature regulation
I have permanently cold hands and feet.
In context ↗