Housebound with long COVID, now much better with nervous system work and time
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
I believe I had asymptomatic COVID and it turned into long COVID. POTS is one of my most prevalent symptoms.
In context ↗ - At worst: Moderate
I would say I have mostly graduated from being housebound ... It used to be very hard to get through the day
In context ↗ - Now: Much better
It's been an up and down process but I am recovering ... I've been able to go out with friends and have had more freedom.
- Began after: COVID
I believe I had asymptomatic COVID and it turned into long COVID.
In context ↗
Read from 7 of their posts and comments; links to the 4 this page draws on
Summary
This user believes an asymptomatic COVID infection became long COVID around October 2024. The first six to eight months were spent spiralling and seeing doctors without answers, with POTS one of their most prevalent symptoms. Nervous system work, inner work and time brought slow gains. By October 2026 they had mostly graduated from being housebound, worked from home and gone out with friends, still having POTS and light sensitivity during flares.
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What they tried
What they credit
Their words about each treatment
- nervous system regulation such as breathing exercises, vagus nerve exercises, and meditation (yoga nidra · Helped
For me nervous system work and inner work along with time and a few other things is what has helped me so far.
In context ↗ - time · Helped
along with time and a few other things is what has helped me so far
In context ↗
Approaches: Mind-body practices
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 6 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| October 2024 | asymptomatic COVID becomes long COVIDI believe I had asymptomatic COVID and it turned into long COVID.In context ↗ | Not stated |
| first 6-8 months | housebound, spiralling, doctors had no answersI would say I have mostly graduated from being housebound ... It used to be very hard to get through the dayIn context ↗ | Moderate |
| 2026 | slow recovery after getting answers and starting nervous system workI did finally get answers and I have been slowly recovering since.In context ↗ | Moderate |
| 2026-10-09 | mostly graduated from being housebound, working from home, going out with friendseven in the past 3 months I would say I have mostly graduated from being houseboundIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
POTS is one of my most prevalent symptoms.
In context ↗ - Breathlessness
Air huger was my first symptom. I haven't had it in a long time.
In context ↗ - Light & noise sensitivity
Light sensitivity is much better. I only really have it when I'm flaring.
In context ↗ - Anxiety & low mood
The panic and anxiety is just another symptom like the rest.
In context ↗
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