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Long COVID Severe → somewhat betterIll 2.5 years before improving or writingNeeds ongoing treatment

Long COVID heart pounding and breathlessness, somewhat better with beta blockers and rest

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
2.5 years
Last post
Jul 2023
In their words
  • At worst: Severehaving your heart beat out of your chest every second of every day ... walk more than 2 feet
  • Now: Somewhat betterI definitely have gotten better but I am not 100% In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A person with long COVID had constant heart pounding and breathlessness on standing that made walking more than two feet hard. Beta blockers helped make it bearable but did not fully resolve it, and after two years they had improved though were not fully recovered. They found rest, water and time helpful, while sugary drinks sent them into a relapse.

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Asking aboutMesa 13909’s story

What they tried

Their words about each treatment
  • magnesium · No changealso taking magnesium which was said to help but so far no luck In context ↗
  • water and Gatorade / hydration · HelpedI just rested and made sure I was hydrated NOTHING BUT WATER In context ↗
  • resting / taking it easy · Not saidI just rested and made sure I was hydrated In context ↗
  • beta blockers · HelpedI’m on beta blockers which are so helpful but for me at least they do not fully resolve the issue just make it more bearable In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered6 mo12 mo18 mo2 y2.5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
early February 2021heart pounding constantly, chest heaviness on standing and breathlessnessbeing able to walk more than 2 feet without feeling like my heart was going to explode In context ↗Severe
July 10, 2023improved but not fully recovered; beta blockers make symptoms bearableI definitely have gotten better but I am not 100% In context ↗MildBeta-blockers (unspecified)

Symptoms mentioned

Their words about their symptoms
  • Breathlessnessthe lessening of the shortness of breath just from standing up In context ↗

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