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Long COVID Mild → no benefitIll for 1 month

Long COVID with manual breathing, insomnia and anxiety; no overall improvement

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill for
1 month
Last post
Aug 2023
In their words
  • Condition: Long COVIDI have been a LH for a very long time In context ↗
  • At worst: MildGoing out of the house and doing things seems to help somewhat In context ↗
  • Now: No benefitdidn’t make the symptoms go away permanently In context ↗
  • Began after: COVIDI have been a LH for a very long time In context ↗
Read from 8 of their posts and comments; links to the 5 this page draws on

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Summary

A Reddit user who became ill in July 2023 with a constant feeling of having to breathe manually, along with insomnia, anxiety and acid reflux. Emergency doctors called it anxiety. Ativan at night and small amounts of alcohol eased the sensation, and smoking cigarettes helped a little without lasting. They also took famotidine daily and thought it lowered their heart rate after eating.

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Asking aboutMarsh 78473’s story

What they tried

Their words about each treatment
  • alcohol / wine · Helpedsometimes I have some wine and that helps a little bit In context ↗
  • Xanax · Helpedthe only reprieve I seem to get from the feeling is if I drink alcohol or take a sedative like Xanax In context ↗
  • Ativan · HelpedI have been taking Ativan at night to knock me out ... if I take an Ativan, I don’t feel it as much
  • paper bag rebreathing · No changeI just did some and used a paper bag. I still have the feeling unfortunately In context ↗
  • Pepcid · Helpedit hasn’t been AS high as it usually is since starting the Med In context ↗
  • Zyrtec · Not saidI don’t take an antihistamine daily but you know what? It’s worth a try. In context ↗
  • regular cigarettes · HelpedI tried smoking as well (not nicotine patches just regular cigarettes) and it helped a little bit but didn’t make the symptoms go away permanently In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 wk

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
July 12, 2023became ill with a constant feeling of having to breathe manuallyI was completely normal and fine before July 12th. In context ↗Mild
2023-08-04constant manual-breathing sensation, unable to sleep at nightThe worst time with this is when I am trying to go to sleep at night. In context ↗Mild
2023-08-05smoking cigarettes gave slight relief but did not lastI tried smoking as well (not nicotine patches just regular cigarettes) and it helped a little bit but didn’t make the symptoms go away permanently. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • BreathlessnessI feel like my breathing has become manual - and is no longer automatic and unconscious. In context ↗
  • Sleep problemsI can’t sleep at night due to this odd feeling/sensation. In context ↗
  • Anxiety & low moodIt doesn’t reduce the anxiety and it only makes it worse when people tell me to calm down. In context ↗
  • POTS & dysautonomiaencountered terrible brain damage from the dysautonomia In context ↗
  • Heart symptoms & palpitationsUsually my HR skyrockets after I eat In context ↗
  • Gut problemsI complained about the acid reflux I have In context ↗

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