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ME/CFS Moderate → much better

CFS with sensitive eyes and brain fog, much better after nasal cleansing and a colonoscopy

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill before improving or writing
Not stated
Last post
Dec 2025
In their words
  • Condition: ME/CFSI still have cfs, and noticeably, but on a whole different level. In context ↗
  • At worst: ModerateI can get up in the morning again, do more than one thing in a 3 hours window, and have more physical energy ... Not exhausted after a phone call. Able to calculate again. Overall no longer in survival mode. In context ↗
  • Now: Much betterI still have cfs, and noticeably, but on a whole different level. In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

A Reddit user with CFS whose eyes had become more sensitive and whose brain could no longer tolerate slightly off lenses. In 2023 they tried mechanical cleansing of their nasal and throat passages and reported feeling very good afterwards. In December 2025, ten days after starting a medication and a week after a colonoscopy, they had felt like their old self again since immediately after the colonoscopy, with brain fog gone and restful sleep. They still had CFS, noticeably, and could not tell whether the drug or the colonoscopy was responsible.

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What they tried

Also tried

progressive lenses· Helpedsutra neti / mechanical cleansing with cotton· Helpedcolonoscopy· Not saidagomelatine· Not said
Their words about each treatment
  • progressive lenses · HelpedIt took me around 3 weeks to get used to them In context ↗
  • sutra neti / mechanical cleansing with cotton · Helpedalready with what I would call success and good result In context ↗
  • colonoscopy · Not saidSince immediately after the colonoscopy I feel like my old self again. In context ↗
  • agomelatine · Not saidI can't tell if it's from the ago, or because the bad colon fauna is gone. In context ↗

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
2022-09-22Living with CFS; eyes more sensitive, brain less tolerant of off lensesMy vision hasn't worsened from cfs but my eyes are more sensitive and my brain can't tolerate slightly off lenses any more, unlike before. In context ↗
2025-12-04Felt like old self again after agomelatine and a colonoscopySince immediately after the colonoscopy I feel like my old self again. It's such a huge difference. In context ↗Agomelatine (Valdoxan)
2025-12-04Still has CFS but on a different levelI still have cfs, and noticeably, but on a whole different level. In context ↗

Symptoms mentioned

Their words about their symptoms

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