ME/CFS: too unwell to push own wheelchair, somewhat better with medical cannabis
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- May 2024
In their words
- At worst: Severe
I have a manual chair which has offroad wheels in case I want to go for a nature walk, but I can't push it myself without making myself really unwell so my partner pushes me.
In context ↗ - Now: Somewhat better
Yes, just gone with alternaleaf for medical cannabis. Really helping my situation, allowing me to do my physio etc.
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
Mesa 98950 has fibromyalgia and POTS and said they were gaslit for too long. They could not push their own manual wheelchair without making themselves really unwell, relied on their partner to push it, and anxiety stopped them going out alone even on a scooter. Medical cannabis from Alternaleaf helped, letting them do their physio.
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What they tried
What they credit
Also tried
Their words about each treatment
- lying down and shifting positions · Helped
The only way I can manage it is, as you say, going to lay down as soon as possible.
In context ↗ - medical cannabis · Helped
Yes, just gone with alternaleaf for medical cannabis. Really helping my situation, allowing me to do my physio etc.
In context ↗ - electrolytes · Helped
Gotta have electrolytes, and a lot more than I would normally have.
In context ↗ - physio · Not said
Really helping my situation, allowing me to do my physio etc.
In context ↗ - manual wheelchair · Not said
I have a manual chair which has offroad wheels in case I want to go for a nature walk, but I can't push it myself without making myself really unwell so my partner pushes me.
In context ↗ - mobility scooter · Not said
Because of that, I got a scooter. ... I can use this one all by myself.
In context ↗
Approaches: Other drugs and medicines
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | ill with ME/CFS, fibromyalgia and POTSI have fibro as well, and I've also been diagnosed with POTS.In context ↗ | Not stated |
| 2024-05-17 | medical cannabis helped them do their physioYes, just gone with alternaleaf for medical cannabis. Really helping my situation, allowing me to do my physio etc.In context ↗ | Not stated |
| 2024-05-20 | needed partner to push manual wheelchair; used a scooter; anxiety kept them from going out aloneI can't push it myself without making myself really unwell so my partner pushes me.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I've also been diagnosed with POTS
In context ↗ - Heart symptoms & palpitations
if I drink plain water with fast hr I throw up too
In context ↗ - Pain & fibromyalgia
I have fibro as well
In context ↗ - Anxiety & low mood
my anxiety stops me from going outside alone
In context ↗ - Post-exertional malaise
I can't push it myself without making myself really unwell
In context ↗
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